When I was first diagnosed with multiple autoimmune diseases, my first thought was, “What am I going to do?” My doctors really didn’t have an answer. Next, I thought, “Why me?” Again, there were no true answers. My thinking stayed in the “Why me?” stage for many years along with anger and depression. Slowly, I realized that I needed to allow myself to grieve. The person I had been, pre-diagnosis, was gone. However, I am now a stronger and more compassionate person. My thinking at present is one of “Why not me?”
Amanda was 21 when she was diagnosed with Eosinophilic Fasciitis with localized Scleroderma, Sjogren’s Syndrome, Raynaud’s Phenomenon, Fibromyalgia, and Ehlers-Danlos Syndrome. The treatments for her autoimmune diseases gave rise to other conditions, such as Diabetes, Osteoporosis, and Chronic Pancreatitis. She has been living with multiple autoimmune disease for 18 years.
Edited By: Tiffany Simms