patient stories, Uncategorized

The World Isn’t an Easy Place


– “How has your life changed after diagnosis?” –
“Before diagnosis, I was a very active person.  Immediately after diagnosis, my life changed drastically.  My activity level decreased to the point I was basically housebound and on many days, I was bed bound. In the eighteen years that have passed, I have been able to increase my activity level. Many days, this is working in spite of and despite the pain and fatigue. I am still unable to participate in the workforce, but there are many things I can now enjoy, such as an occasional hike or bike ride. I find that I am a more caring and understanding person. My own challenges have allowed me to see that the world isn’t an easy place for many, if not most of us.” ~Amanda

To our readers, how has multiple autoimmune diseases changed your life? email your story to

Edited By: Tiffany Simms

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