Autoimmunity Voices

Autoimmune diseases are invisible: they often don't present externally and seemingly slip through the grasp of doctors' diagnoses. These are glimpses of the stories and voices of autoimmune patients from our Stanford MedicineX Workshop Survey that highlight the long and arduous struggles many autoimmune patients face with diagnosis.

The 5 Ways I Found My Personal Power: From Stanford MedicineX 2014 to 2017

1. Finding courage to look for a community at Medx 2014 & 2015 Spurred by experiencing my own vague symptoms and watching autoimmune disease pop up in my network of family and friends, I found my passion and dreamed of…

Decoding Autoimmunity

By Bonnie Feldman, Ellen M Martin, and Tiffany Simms What Do We Mean by the Autoimmune Abyss? More than 50M patients in the US are living with 100+ different kinds of autoimmune diseases. In “The Lonely Voices of Autoimmune Disease”…

Being “Old” at 13: How I Learned to Live With Psoriatic Arthritis

I was constantly labeled the ‘hard’ or ‘interesting’ case and seemed to stump every doctor I visited. [5th grade through high school] My story: [Fast forward to post college] I held an IT consulting job that kept me on my…

One Step Forward, Two Steps Back

I dread the thought of getting wet and smelling like chlorine. That was the first thing I thought when thinking about trying pool therapy for my musculoskeletal issues. However, embracing the spirit of adventure and experimentation of my New Year’s…

DIY: What to Do with Information Overload

A Scientist Meets a Naturopath  I am not sure why, but I expected a personalized, spa-like center, similar to a yoga studio or an acupuncture office without the usual waiting times. Instead, I was greeted with a busy conventional looking…

Coming Out of the Closet

By: Tiffany Simms, Bonnie Feldman, and Ellen M Martin  Autoimmunity has spent a long time in the shadows. It has a history of being under-served, under-recognized, and under-funded.  However, things are looking up. Just this past year, we’ve had hope…

The Autoimmune Masquerade

Continuing Briane’s story, she gives us another perspective on college life and autoimmunity.  From her struggles, sacrifices, and positive outlook, Briane turns her story into one of inspiration and advice. –Do you have everyday struggles?– You know that feeling when…