autoimmune research, lifestyle, mind-body, patient stories, Uncategorized

The 5 Ways I Found My Personal Power: From Stanford MedicineX 2014 to 2017

1. Finding courage to look for a community at Medx 2014 & 2015 Spurred by experiencing my own vague symptoms and watching autoimmune disease pop up in my network of family and friends, I found my passion and dreamed of reimagining research, diagnosis, and care for all my loved ones suffering from mysterious illnesses. Chasing… Continue reading The 5 Ways I Found My Personal Power: From Stanford MedicineX 2014 to 2017

autoimmune research, digital health, lifestyle, patient stories

Decoding Autoimmunity

By Bonnie Feldman, Ellen M Martin, and Tiffany Simms What Do We Mean by the Autoimmune Abyss? More than 50M patients in the US are living with 100+ different kinds of autoimmune diseases. In “The Lonely Voices of Autoimmune Disease” young adults talk about the challenges of living with chronic disease in the prime of… Continue reading Decoding Autoimmunity

patient stories

Being “Old” at 13

  I was constantly labeled the ‘hard’ or ‘interesting’ case and seemed to stump every doctor I visited. [5th grade through high school] My story: [Fast forward to post college] I held an IT consulting job that kept me on my toes 24/7/365. My pain came back in the form of hip pain that traveled… Continue reading Being “Old” at 13

lifestyle, patient stories

One Step Forward, Two Steps Back

I dread the thought of getting wet and smelling like chlorine. That was the first thing I thought when thinking about trying pool therapy for my musculoskeletal issues. However, embracing the spirit of adventure and experimentation of my New Year’s Resolution, I went ahead and signed up for two pool therapy session. Still, I couldn’t… Continue reading One Step Forward, Two Steps Back

patient stories

Coming Out of the Closet

By: Tiffany Simms, Bonnie Feldman, and Ellen M MartinAutoimmunity has spent a long time in the shadows. It has a history of being under-served, under-recognized, and under-funded.  However, things are looking up. Just this past year, we’ve had hope from complementary medicine coming to the forefront and personalized nutrition getting easier. While these improvements did… Continue reading Coming Out of the Closet

autoimmune research, patient stories

Autoimmunity Voices

About Us: Although digital health commands $4B in funding, autoimmune diseases have remained wallflowers at the party. So, how do we make this lonely world of autoimmune disease not so lonely? Currently, there is a huge unmet need in autoimmune disease. These not-obvious - under the surface - invisible - diseases cause 50 million patients… Continue reading Autoimmunity Voices

patient stories

The Autoimmune Masquerade

Continuing Briane’s story, she gives us another perspective on college life and autoimmunity.  From her struggles, sacrifices, and positive outlook, Briane turns her story into one of inspiration and advice. –Do you have everyday struggles?– You know that feeling when you have a cold and your body is extra achy and tired because it’s using… Continue reading The Autoimmune Masquerade

patient stories

Believe It or Not

By Tiffany Simms, Bonnie Feldman, and Ellen M Martin Why are the lonely voices of autoimmune disease so lonely? What compelled us to coin this name? Autoimmune disease is underserved, overlooked, and under-appreciated. Due to the invisible nature of autoimmune diseases, many of its patients look normal and healthy. This presents a challenge for patients’… Continue reading Believe It or Not

patient stories

Forced to Slow Down: Living with an Invisible Disease in College

Briane has fibromyalgia and is currently a UCLA student who started up a community group called You Are Not Alone. Her story chronicles the challenges of an invisible disease; if she had known about fibromyalgia earlier, perhaps she could’ve prevented the intensity. Yet, despite all the pain and cut backs from fibromyalgia, her perspective became… Continue reading Forced to Slow Down: Living with an Invisible Disease in College

patient stories

It’s Not Contagious!

Following Will, our second UCLA student, Tia, lends us her voice in describing the challenges of living with and caring for psoriasis. –Did you know about Psoriasis before you had it?– I had no idea what psoriasis was! The first time I ever showed symptoms I just had one small spot, and my doctor thought… Continue reading It’s Not Contagious!