patient stories, Uncategorized

Forced to Slow Down: Living with an Invisible Disease in College

Briane has fibromyalgia and is currently a UCLA student who started up a community group called You Are Not Alone. Her story chronicles the challenges of an invisible disease; if she had known about fibromyalgia earlier, perhaps she could’ve prevented the intensity. Yet, despite all the pain and cut backs from fibromyalgia, her perspective became… Continue reading Forced to Slow Down: Living with an Invisible Disease in College

patient stories, Uncategorized

It’s Not Contagious!

Following Will, our second UCLA student, Tia, lends us her voice in describing the challenges of living with and caring for psoriasis. –Did you know about Psoriasis before you had it?– I had no idea what psoriasis was! The first time I ever showed symptoms I just had one small spot, and my doctor thought… Continue reading It’s Not Contagious!

autoimmune research, digital health, patient stories, Uncategorized

Bridging the Autoimmune Abyss

From Stanford Medicine X 2015 Listen to the talk here.

autoimmune research, digital health, patient stories

#WhatIf We Could Think Differently For Autoimmunity – MedXAutoimmune

[View the story “#WhatIf We Could Think Differently for Autoimmunity - Stanford MedX 2015” on Storify]

autoimmune research, patient stories

Bridging the Autoimmune Abyss at #MedX 2015

[View the story “ Bridging the Autoimmune Abyss at Stanford MedX 2015 ” on Storify]

patient stories

Finding Resilience in Adversity

-How has your life been since having multiple autoimmune diseases?- Like many autoimmune patients, I have my ups and downs, but I have been very fortunate to be able to lead an active life, in many senses of the word. I am able to get outside into nature almost every week, I am able to… Continue reading Finding Resilience in Adversity

patient stories

Some Men Suffer Silently

[Will on the far right] I had never heard of psoriasis previous to my diagnosis. I had no indication of the coming onset of my autoimmune disease. However, my mother is diagnosed with mild Crohn’s Disease, and I had digestion issues as a child, so there was concern as to this being an issue. My grandfather also has mild psoriasis that I… Continue reading Some Men Suffer Silently

autoimmune research, patient stories, Uncategorized

Tinkering and Tweaking with Self Care

By Tiffany Simms, Bonnie Feldman, and Ellen M Martin While we wait for traditional medicine to catch up to our needs, will integrative practices be the way to go? Following Lilly, Julie, from It’s Just a Bad Day, further emphasizes how diet and lifestyle modifications have significantly improved her autoimmunity.   Having done so much research on… Continue reading Tinkering and Tweaking with Self Care

autoimmune research, digital health, patient stories, Uncategorized

Crowd Power

Bringing a fresh approach to collaboration and sharing of ideas, HealthIMPACT West, did not include lectures or powerpoints. Instead, when Megan Antonelli first envisioned her goals for Purpose events, she wanted to bring about a “face to face” meeting where a shared focus could bring forth “new insights, a clearer sense of purpose, and solutions that… Continue reading Crowd Power