Tinkering, Tracking, & Tweaking

Following Lilly’s Journey in discovering her autoimmune disease and struggling through diagnosis, she lends us her voice in experimental lifestyle modification and what could most help herself and the autoimmune community. –Have you seen both traditional medicine practitioners and/or integrative…

How Do You See The Invisible?

  Like heart disease, diabetes, and many other chronic diseases,  autoimmune disease is an invisible disease. –Any memorable moments while being tested?– “The most memorable and frustrating time for me was before I was diagnosed with Crohn’s Disease. I was…

Autoimmune Disease as an Invisible Illness

[Summer of 2011] One morning I woke up and was paralyzed by aching throughout my entire body. Any move I made caused excruciating pain in my joints. I could not even turn over in my bed without feeling agonizing discomfort.…

The World Isn’t an Easy Place

– “How has your life changed after diagnosis?” – “Before diagnosis, I was a very active person.  Immediately after diagnosis, my life changed drastically.  My activity level decreased to the point I was basically housebound and on many days, I…

The Power of Story and Listening at the 8th Annual Body Computing Conference

What can healthcare learn from Hollywood? Do you feel inspired by a good story? We all do, “because our brains are hard wired for stories,” explains Ed Saxon at the 8th Annual Body Computing Conference. “Stories are how we learn about…

Patient Communities: Filling an Unmet Need

As a continuation of “Getting Healthy is a Team Sport,” we will now look at what patients do online and what purpose patient communities serve. Why do patients go online? A 2004 survey shows how patients dissatisfied with traditional medical…

It’s Never Too Late – Conquering Fear of Public Speaking

They say it takes a village. In my case it took a village’s worth of coaches! To do what you wonder? To overcome my fear of public speaking. Most people who know me will be very surprised – it’s been a…