With the explosion of social media in today’s technological landscape, patient voices are increasingly relevant in rheumatology. Across platforms, countless patients have stepped up as leaders and influencers, using their platforms to share stories and empower others. As a patient and patient advocate myself, I’m extremely appreciative of the work
In my mission to connect with autoimmune advocates, I have also collaborated with forerunners of patient advocacy and healthcare innovation. Advocacy spans beyond social media, and delves into the sectors of digital health, consulting, and innovation. In this second part, we’ll dive deeper into the dynamic world of advocacy, where
Spotlight on Myasthenia Gravis (MG) In this post, we deep dive into the symptoms, pathology, diagnosis, and treatment for MG.
Since 2010, we have sought autoimmune disease (AIID) incidence and prevalence data. Despite efforts by independent organizations like AARDA/AA, AIR and many single disease groups, we never found total national autoimmune statistics. NIH/CDC statistics bury AIIDs within siloed categories: Arthritis, diabetes, or by medical specialty: rheumatology, neurology, dermatology, endocrine, etc.
Sjogren’s Syndrome is an autoimmune disorder that affects the entire body, frequently characterized by dry eyes and mouth, fatigue, and joint and muscle pain. As it is April, Sjogren’s Awareness Month, DrBonnie360 takes an in depth look at the causes, symptoms, and treatments and communities available to patients with this autoimmune condition.
Small fiber Neuropathy is a disorder of the small, sensory cutaneous nerves characterized by severe pain attacks starting in the feet. Here DrBonnie360 deep dives into the details and intricacies of this condition, and delineates therapeutic options and supportive patient communities to help you conquer your own health journey.
In honor of National Autoimmune Awareness Month, we started a series of information and resources posts on autoimmune and autoinflammatory conditions, in hopes of raising awareness and connecting patients and others with useful information.
As knowledge of nutrition and food-as-medicine expands, using food as therapy to support health and wellbeing has become increasingly popular. This is especially the case for patients with autoimmune and autoinflammatory conditions. For example self-experimenting patients with Ankylosing Spondylitis are finding foods can help (or hurt) their condition. More and
Written by: Bonnie Feldman, DDS, MBA, Anna Simon, Ellen M. Martin It took me 5 years and 12 specialists to be diagnosed with Celiac and Hashimoto’s. I want the next person to be diagnosed on the first doctor. – anonymous patient participant in our Autoimmunity Voices survey. Autoimmune disease is an
Just as food is fuel for our bodies, it is also one of the best natural medicines for our bodies. Autoimmune diseases such as Hashimoto’s Disease can be largely affected by certain foods. Continue reading to learn how to use food as a health enhancer and a therapy agent to help mitigate the symptoms of Hashimoto’s.
