Written by: Bonnie Feldman, DDS, MBA, Anna Simon, Ellen M. Martin Autoimmune disease is an “invisible epidemic.” Despite affecting roughly 16% of the US population, autoimmunity remains under-recognized, under-researched and under-served. To combat this lack of awareness, as well as to connect patients, families, and caregivers with useful resources, we at Your Autoimmunity Connection are publishing… Continue reading Spotlight on Celiac Disease
Written by: Hailey Motooka, Bonnie Feldman, DDS, MBA, Ellen M. Martin Crohn’s, Lupus, and Celiac mean different things to different people. To some, they are completely foreign words that could pass as Pokemon names. To others, they are words occasionally mentioned in commercials about some medication with a million different side effects. But to the… Continue reading The Oral Origins of Autoimmune Diseases
By Bonnie Feldman, Ellen M Martin, and Tiffany Simms What Do We Mean by the Autoimmune Abyss? More than 50M patients in the US are living with 100+ different kinds of autoimmune diseases. In “The Lonely Voices of Autoimmune Disease” young adults talk about the challenges of living with chronic disease in the prime of… Continue reading Decoding Autoimmunity
Turning Autoimmune Dreams into Reality Being a Big Vision entrepreneur is a ride on an emotional rollercoaster. My vision is of a connected world of personalized care for autoimmune patients that uses data and digital tools to reshape research, diagnosis and clinical practice for autoimmune disease. This, of course, is outside today’s mainstream thinking, which… Continue reading Ahead of My Time or Out of My Mind?
By Tiffany Simms, Bonnie Feldman, and Ellen M Martin Why are the lonely voices of autoimmune disease so lonely? What compelled us to coin this name? Autoimmune disease is underserved, overlooked, and under-appreciated. Due to the invisible nature of autoimmune diseases, many of its patients look normal and healthy. This presents a challenge for patients’… Continue reading Believe It or Not
What does a “healthy” microbiome look like? Who is part of a microbiome? How can we quantify and analyze our microbiome? The Human Microbiome Project (HMP), a $173 million project by the NIH, was initiated to address these questions. It focuses on a comprehensive characterization of the human microbiome and the development of computational tools… Continue reading Research Initiatives Around the Microbiome
Elaine Monarch suffered from a mysterious illness for most of her adult life. It was only in her 50s that she received an accurate diagnosis: celiac disease (CD). CD is an autoimmune disease that causes damage to the small intestine when a person eats gluten, a protein found in common grains like wheat. Ten years… Continue reading The Celiac Disease Foundation: Raising Awareness and Promoting Research