I was constantly labeled the ‘hard’ or ‘interesting’ case and seemed to stump every doctor I visited. [5th grade through high school] My story: [Fast forward to post college] I held an IT consulting job that kept me on my toes 24/7/365. My pain came back in the form of hip pain that traveled down… Continue reading Being “Old” at 13
By Bonnie Feldman and Ellen M Martin Digital health is filled with promise, but for autoimmune patients many gaps persist. With an eye to bridging those gaps, I recently attended two very different conferences: The Interdisciplinary Autoimmune Summit was a continuing education meeting to help practicing physicians better treat complex autoimmune patients using a multidisciplinary,… Continue reading Bridging the Autoimmune Abyss – Exploring the Connection between Food and Digestive Diseases with MyGiHealth
Bringing a fresh approach to collaboration and sharing of ideas, HealthIMPACT West, did not include lectures or powerpoints. Instead, when Megan Antonelli first envisioned her goals for Purpose events, she wanted to bring about a “face to face” meeting where a shared focus could bring forth “new insights, a clearer sense of purpose, and solutions that… Continue reading Crowd Power
Like heart disease, diabetes, and many other chronic diseases, autoimmune disease is an invisible disease. –Any memorable moments while being tested?– “The most memorable and frustrating time for me was before I was diagnosed with Crohn’s Disease. I was in and out of the ER three times in one weekend because the doctors kept… Continue reading How Do You See The Invisible?
By Tiffany Simms and Bonnie Feldman “My doctors really didn’t have an answer” “The entire time my family doctor had no answer as to what was wrong with me” “No one in 7 years had ever thought to test me for an autoimmune disease” “The hospital staff thought I was faking it” “‘It’s different for… Continue reading Becoming Visible
What can healthcare learn from Hollywood? Do you feel inspired by a good story? We all do, “because our brains are hard wired for stories,” explains Ed Saxon at the 8th Annual Body Computing Conference. “Stories are how we learn about history, morality and science – i.e. Issac Newton.” Our brain is the “biggest neural pathway… Continue reading The Power of Story and Listening at the 8th Annual Body Computing Conference