patient stories, Uncategorized

Being “Old” at 13: How I Learned to Live With Psoriatic Arthritis

I was constantly labeled the ‘hard’ or ‘interesting’ case and seemed to stump every doctor I visited. [5th grade through high school] My story: [Fast forward to post college] I held an IT consulting job that kept me on my toes 24/7/365. My pain came back in the form of hip pain that traveled down… Continue reading Being “Old” at 13: How I Learned to Live With Psoriatic Arthritis

autoimmune research, digital health, microbiome

Bridging the Autoimmune Abyss – Exploring the Connection between Food and Digestive Diseases with MyGiHealth

By Bonnie Feldman and Ellen M Martin Digital health is filled with promise, but for autoimmune patients many gaps persist. With an eye to bridging those gaps, I recently attended two very different conferences: The Interdisciplinary Autoimmune Summit was a continuing education meeting to help practicing physicians better treat complex autoimmune patients using a multidisciplinary,… Continue reading Bridging the Autoimmune Abyss – Exploring the Connection between Food and Digestive Diseases with MyGiHealth

autoimmune research, digital health, patient stories, Uncategorized

Crowd Power

Bringing a fresh approach to collaboration and sharing of ideas, HealthIMPACT West, did not include lectures or powerpoints. Instead, when Megan Antonelli first envisioned her goals for Purpose events, she wanted to bring about a “face to face” meeting where a shared focus could bring forth “new insights, a clearer sense of purpose, and solutions that… Continue reading Crowd Power

patient stories, Uncategorized

How Do You See The Invisible?

  Like heart disease, diabetes, and many other chronic diseases,  autoimmune disease is an invisible disease. –Any memorable moments while being tested?– “The most memorable and frustrating time for me was before I was diagnosed with Crohn’s Disease. I was in and out of the ER three times in one weekend because the doctors kept… Continue reading How Do You See The Invisible?

autoimmune research, digital health, patient stories, Uncategorized

The Power of Story and Listening at the 8th Annual Body Computing Conference

What can healthcare learn from Hollywood? Do you feel inspired by a good story? We all do, “because our brains are hard wired for stories,” explains Ed Saxon at the 8th Annual Body Computing Conference. “Stories are how we learn about history, morality and science – i.e. Issac Newton.” Our brain is the “biggest neural pathway… Continue reading The Power of Story and Listening at the 8th Annual Body Computing Conference