autoimmune research, lifestyle, mind-body, patient stories, Uncategorized

The 5 Ways I Found My Personal Power: From Stanford MedicineX 2014 to 2017

1. Finding courage to look for a community at Medx 2014 & 2015 Spurred by experiencing my own vague symptoms and watching autoimmune disease pop up in my network of family and friends, I found my passion and dreamed of reimagining research, diagnosis, and care for all my loved ones suffering from mysterious illnesses. Chasing… Continue reading The 5 Ways I Found My Personal Power: From Stanford MedicineX 2014 to 2017

autoimmune research, digital health, lifestyle, patient stories, Uncategorized

Decoding Autoimmunity

By Bonnie Feldman, Ellen M Martin, and Tiffany Simms What Do We Mean by the Autoimmune Abyss? More than 50M patients in the US are living with 100+ different kinds of autoimmune diseases. In “The Lonely Voices of Autoimmune Disease” young adults talk about the challenges of living with chronic disease in the prime of… Continue reading Decoding Autoimmunity

autoimmune research, digital health, patient stories

#WhatIf We Could Think Differently For Autoimmunity – MedXAutoimmune

[View the story “#WhatIf We Could Think Differently for Autoimmunity - Stanford MedX 2015” on Storify]

autoimmune research, patient stories

Bridging the Autoimmune Abyss at #MedX 2015

[View the story “ Bridging the Autoimmune Abyss at Stanford MedX 2015 ” on Storify]

autoimmune research, digital health, microbiome

Bridging the Autoimmune Abyss – Exploring the Connection between Food and Digestive Diseases with MyGiHealth

By Bonnie Feldman and Ellen M Martin Digital health is filled with promise, but for autoimmune patients many gaps persist. With an eye to bridging those gaps, I recently attended two very different conferences: The Interdisciplinary Autoimmune Summit was a continuing education meeting to help practicing physicians better treat complex autoimmune patients using a multidisciplinary,… Continue reading Bridging the Autoimmune Abyss – Exploring the Connection between Food and Digestive Diseases with MyGiHealth

autoimmune research, digital health, patient stories, Uncategorized

Crowd Power

Bringing a fresh approach to collaboration and sharing of ideas, HealthIMPACT West, did not include lectures or powerpoints. Instead, when Megan Antonelli first envisioned her goals for Purpose events, she wanted to bring about a “face to face” meeting where a shared focus could bring forth “new insights, a clearer sense of purpose, and solutions that… Continue reading Crowd Power

autoimmune research, patient stories, Uncategorized

The Rare Genomics Institute: Fostering Collaboration by Breaking Down Barriers between Patients, Resources, and Researchers

Jimmy Lin, MD PhD MHS, thinks of his digital health nonprofit startup, The Rare Genomics Institute, as an “Amazon-slash-Kickstarter for Science.”  Jimmy was inspired to start the RGI when he met a family whose young son had a rare disease.  The family was exhausting their resources going from doctor to doctor, failing to find anyone… Continue reading The Rare Genomics Institute: Fostering Collaboration by Breaking Down Barriers between Patients, Resources, and Researchers

digital health, Uncategorized

Data Sharing – Genomics

The open data movement and thus data sharing has been steadily growing since 2001. Data Sharing Open data was a movement that came with the Big Data movement. Open data encourages the sharing of data to promote collaboration and reduce costs.  Data sharing is an integral part of many aspects of Big Data in Healthcare,… Continue reading Data Sharing – Genomics