Comfort in Community: Thyroid Refresh

Struggling with an underaddressed and invisible illness like many autoimmune conditions can be incredibly isolating and lonely. The support of a community, thus, makes working through an autoimmune diagnosis much more feasible. Thyroid Refresh provides an interactive game and community to thyroid patients that allows members the resources and encouragement to thrive.

Spotlight on Scleroderma

Written by: Bonnie Feldman, DDS, MBA, Anna Simon, Ellen M. Martin Obtaining appropriate diagnosis, effective treatment, and quality care for autoimmune and chronic conditions is often quite challenging. If you have experienced such struggles, then you are not alone. Statistics show…

Spotlight on Psoriasis & Psoriatic Arthritis

“I think the idea of improving patient care for those with autoimmune diseases is incredibly important,” - anonymous patient participant in our “Autoimmunity Voices” survey. Our survey of autoimmune patients’ experiences revealed a common theme: the need to improve patient…

Your Autoimmunity Connection Newsletter

As a chronic disease patient, my dream is of a world where it doesn't take an average of three years and five doctors for patients to get a diagnosis for their autoimmune disease. Some 117 million people, or about half of all…

Decoding Autoimmunity

By Bonnie Feldman, Ellen M Martin, and Tiffany Simms What Do We Mean by the Autoimmune Abyss? More than 50M patients in the US are living with 100+ different kinds of autoimmune diseases. In “The Lonely Voices of Autoimmune Disease”…

It’s Never Too Late – Conquering Fear of Public Speaking

They say it takes a village. In my case it took a village’s worth of coaches! To do what you wonder? To overcome my fear of public speaking. Most people who know me will be very surprised – it’s been a…

The Rare Genomics Institute: Fostering Collaboration by Breaking Down Barriers

Jimmy Lin, MD PhD MHS, thinks of his digital health nonprofit startup, The Rare Genomics Institute, as an “Amazon-slash-Kickstarter for Science.”  Jimmy was inspired to start the RGI when he met a family whose young son had a rare disease.…

T1D Exchange: Helping Patients and Researchers Collaborate Toward a Cure

Type 1 diabetes is a significant global problem, with 35 million people affected worldwide.  In the United States, there are 2 million T1D patients, accounting for $14 billion in healthcare costs and lost income. Despite decades of research, there are…