food matters, Spotlights on Autoimmune Diseases, Uncategorized

Food Spotlight on Crohn’s Disease

Certain foods and food components may help manage Crohn’s. These are our recommendations for the best and worst foods to eat for Crohn's patients.

autoimmune research, digital health

Crossing the Autoimmune Abyss – The Open Medicine Institute and Foundation

By Bonnie Feldman, Ellen M. Martin Sometimes I find the answers I am looking for in the most unlikely places! Listening to the Lonely Voices of Autoimmune Disease led me on a hunt to find emerging companies using data and digital tools to help the large and growing needs of the autoimmunity community. To my… Continue reading Crossing the Autoimmune Abyss – The Open Medicine Institute and Foundation

patient stories

Some Men Suffer Silently

[Will on the far right] I had never heard of psoriasis previous to my diagnosis. I had no indication of the coming onset of my autoimmune disease. However, my mother is diagnosed with mild Crohn’s Disease, and I had digestion issues as a child, so there was concern as to this being an issue. My grandfather also has mild psoriasis that I… Continue reading Some Men Suffer Silently

digital health, lifestyle, patient stories, Uncategorized

Tinkering, Tracking, & Tweaking

Following Lilly’s Journey in discovering her autoimmune disease and struggling through diagnosis, she lends us her voice in experimental lifestyle modification and what could most help herself and the autoimmune community. –Have you seen both traditional medicine practitioners and/or integrative alternative medicine practitioners?– I have been to both traditional medicine practitioners as well as integrative/alternative… Continue reading Tinkering, Tracking, & Tweaking

patient stories, Uncategorized

How Do You See The Invisible?

  Like heart disease, diabetes, and many other chronic diseases,  autoimmune disease is an invisible disease. –Any memorable moments while being tested?– “The most memorable and frustrating time for me was before I was diagnosed with Crohn’s Disease. I was in and out of the ER three times in one weekend because the doctors kept… Continue reading How Do You See The Invisible?

autoimmune research, microbiome, Uncategorized

What Can Your Poop Do For You?

With antibiotic resistance on the rise, we are in dire need for alternative treatments. Today we discuss one therapy in particular, Fecal Transplants. In this post we will reference different journal articles, blogs, and studies to give you a better idea of what this new therapy is all about. Early Evidence in Crohns A remarkable… Continue reading What Can Your Poop Do For You?

patient stories, Uncategorized

Real or Not Real

[Summer of 2011] One morning I woke up and was paralyzed by aching throughout my entire body. Any move I made caused excruciating pain in my joints. I could not even turn over in my bed without feeling agonizing discomfort. I became completely reliant on my mother to do everything for me. I gained twenty… Continue reading Real or Not Real

autoimmune research, Uncategorized

AARDA: An Idea Ahead of Its Time

An Overlooked Disease Autoimmune disease (AD) is a drastically underappreciated problem. There are 80-100 ADs, and researchers suspect that 40 additional diseases have an autoimmune element. AARDA estimates that 50 million Americans suffer from autoimmune disease, but there appears to be an increasing incidence in young adults. AD is responsible for a great deal of… Continue reading AARDA: An Idea Ahead of Its Time