Personal Experiments

Part 2: Seqster Creates Personal Health Record for Autoimmune Patients

Written by: Bonnie Feldman, DDS, MBA, and Hailey Motooka For many years I have seen countless doctors and specialists—one of the many collateral effects of living with an autoimmune disease. Symptoms of autoimmune diseases can vary significantly between individuals, depending upon genetic, behavioral, and environmental factors. Thus, diagnosing an autoimmune disease takes, on average, 4.6… Continue reading Part 2: Seqster Creates Personal Health Record for Autoimmune Patients

Spotlights on Autoimmune Diseases, Uncategorized

Spotlight on Psoriasis & Psoriatic Arthritis

“I think the idea of improving patient care for those with autoimmune diseases is incredibly important,” - anonymous patient participant in our “Autoimmunity Voices” survey. Our survey of autoimmune patients’ experiences revealed a common theme: the need to improve patient care. As Your Autoimmunity Connection, we share this same goal. Patient care does not just… Continue reading Spotlight on Psoriasis & Psoriatic Arthritis

autoimmune research, digital health, Uncategorized

Your Autoimmunity Connection Newsletter

As a chronic disease patient, my dream is of a world where it doesn't take an average of three years and five doctors for patients to get a diagnosis for their autoimmune disease. Some 117 million people, or about half of all US adults, are living with one or more chronic health conditions, and many of them… Continue reading Your Autoimmunity Connection Newsletter

autoimmune research, digital health, patient stories

#WhatIf We Could Think Differently For Autoimmunity – MedXAutoimmune

[View the story “#WhatIf We Could Think Differently for Autoimmunity - Stanford MedX 2015” on Storify]

autoimmune research, digital health

Crossing the Autoimmune Abyss – The Open Medicine Institute and Foundation

By Bonnie Feldman, Ellen M. Martin Sometimes I find the answers I am looking for in the most unlikely places! Listening to the Lonely Voices of Autoimmune Disease led me on a hunt to find emerging companies using data and digital tools to help the large and growing needs of the autoimmunity community. To my… Continue reading Crossing the Autoimmune Abyss – The Open Medicine Institute and Foundation

patient stories

Finding Resilience in Adversity

-How has your life been since having multiple autoimmune diseases?- Like many autoimmune patients, I have my ups and downs, but I have been very fortunate to be able to lead an active life, in many senses of the word. I am able to get outside into nature almost every week, I am able to… Continue reading Finding Resilience in Adversity