digital health, lifestyle, movement therapy, Uncategorized

The Power of Personalized Coaching

Having a chronic disease does not mean that we are powerless in achieving our best states of health. In fact, maximizing our personal well-being may be well within our control! More resources are becoming available to help patients overcome their chronic symptoms. One of these valuable resources is Vida’s personalized coaching platform - an app… Continue reading The Power of Personalized Coaching

food matters, lifestyle, Uncategorized

Ancient Eating Gone Wild: Paleo, Fact or Fiction?

In this day and age of social connectivity and communication, ideas and movements have the potential to spread like wildfire. You could say that possibly anything could go viral, even a diet. Traditionally, diets are not something you would expect to go viral, but with the tidal wave of health conscious consumers, fad diets have become… Continue reading Ancient Eating Gone Wild: Paleo, Fact or Fiction?

autoimmune research, food matters, lifestyle, microbiome, Uncategorized

Personalized Nutrition to Modify Autoimmune Symptoms

By Bonnie Feldman, Tiffany Simms and Ellen M Martin Through our surveys of autoimmune patients and our Stanford Medicine X workshop, we found many autoimmune patients feeling ill-used and underserved by conventional medical care. Many other blogs and web sites also spotlight these issues across the autoimmune community. Widespread are feelings that no one was… Continue reading Personalized Nutrition to Modify Autoimmune Symptoms

patient stories, Uncategorized

How Do You See The Invisible?

  Like heart disease, diabetes, and many other chronic diseases,  autoimmune disease is an invisible disease. –Any memorable moments while being tested?– “The most memorable and frustrating time for me was before I was diagnosed with Crohn’s Disease. I was in and out of the ER three times in one weekend because the doctors kept… Continue reading How Do You See The Invisible?

autoimmune research, digital health, Uncategorized

Becoming Visible

By Tiffany Simms and Bonnie Feldman “My doctors really didn’t have an answer” “The entire time my family doctor had no answer as to what was wrong with me” “No one in 7 years had ever thought to test me for an autoimmune disease” “The hospital staff thought I was faking it” “‘It’s different for… Continue reading Becoming Visible

patient stories, Uncategorized

The World Isn’t an Easy Place

– “How has your life changed after diagnosis?” – “Before diagnosis, I was a very active person.  Immediately after diagnosis, my life changed drastically.  My activity level decreased to the point I was basically housebound and on many days, I was bed bound. In the eighteen years that have passed, I have been able to… Continue reading The World Isn’t an Easy Place

patient stories, Uncategorized

Why Me?

When I was first diagnosed with multiple autoimmune diseases, my first thought was, “What am I going to do?”  My doctors really didn’t have an answer.  Next, I thought, “Why me?”  Again, there were no true answers.  My thinking stayed in the “Why me?” stage for many years along with anger and depression. Slowly, I… Continue reading Why Me?

autoimmune research, digital health, patient stories, Uncategorized

T1D Exchange: Helping Patients and Researchers Collaborate Toward a Cure

Type 1 diabetes is a significant global problem, with 35 million people affected worldwide.  In the United States, there are 2 million T1D patients, accounting for $14 billion in healthcare costs and lost income. Despite decades of research, there are still significant gaps in our understanding of this disease, due to a lack of collaboration.… Continue reading T1D Exchange: Helping Patients and Researchers Collaborate Toward a Cure

autoimmune research, digital health, Uncategorized

The Lonely Universe of Autoimmune Diseases and Hope for the Future

How would you feel if, after years of searching for a diagnosis, you finally found out you have an autoimmune disease, and then you realized that your doctors will have to experiment on you to find the right treatment? That’s the state of the art today in autoimmune diseases like Crohn’s, Lupus, and MS. At… Continue reading The Lonely Universe of Autoimmune Diseases and Hope for the Future