Having a chronic disease does not mean that we are powerless in achieving our best states of health. In fact, maximizing our personal well-being may be well within our control! More resources are becoming available to help patients overcome their chronic symptoms. One of these valuable resources is Vida’s personalized coaching platform - an app… Continue reading The Power of Personalized Coaching
In this day and age of social connectivity and communication, ideas and movements have the potential to spread like wildfire. You could say that possibly anything could go viral, even a diet. Traditionally, diets are not something you would expect to go viral, but with the tidal wave of health conscious consumers, fad diets have become… Continue reading Ancient Eating Gone Wild: Paleo, Fact or Fiction?
By Bonnie Feldman, Tiffany Simms and Ellen M Martin Through our surveys of autoimmune patients and our Stanford Medicine X workshop, we found many autoimmune patients feeling ill-used and underserved by conventional medical care. Many other blogs and web sites also spotlight these issues across the autoimmune community. Widespread are feelings that no one was… Continue reading Personalized Nutrition to Modify Autoimmune Symptoms
Like heart disease, diabetes, and many other chronic diseases, autoimmune disease is an invisible disease. –Any memorable moments while being tested?– “The most memorable and frustrating time for me was before I was diagnosed with Crohn’s Disease. I was in and out of the ER three times in one weekend because the doctors kept… Continue reading How Do You See The Invisible?
By Tiffany Simms and Bonnie Feldman “My doctors really didn’t have an answer” “The entire time my family doctor had no answer as to what was wrong with me” “No one in 7 years had ever thought to test me for an autoimmune disease” “The hospital staff thought I was faking it” “‘It’s different for… Continue reading Becoming Visible
– “How has your life changed after diagnosis?” – “Before diagnosis, I was a very active person. Immediately after diagnosis, my life changed drastically. My activity level decreased to the point I was basically housebound and on many days, I was bed bound. In the eighteen years that have passed, I have been able to… Continue reading The World Isn’t an Easy Place
When I was first diagnosed with multiple autoimmune diseases, my first thought was, “What am I going to do?” My doctors really didn’t have an answer. Next, I thought, “Why me?” Again, there were no true answers. My thinking stayed in the “Why me?” stage for many years along with anger and depression. Slowly, I… Continue reading Why Me?
Type 1 diabetes is a significant global problem, with 35 million people affected worldwide. In the United States, there are 2 million T1D patients, accounting for $14 billion in healthcare costs and lost income. Despite decades of research, there are still significant gaps in our understanding of this disease, due to a lack of collaboration.… Continue reading T1D Exchange: Helping Patients and Researchers Collaborate Toward a Cure
How would you feel if, after years of searching for a diagnosis, you finally found out you have an autoimmune disease, and then you realized that your doctors will have to experiment on you to find the right treatment? That’s the state of the art today in autoimmune diseases like Crohn’s, Lupus, and MS. At… Continue reading The Lonely Universe of Autoimmune Diseases and Hope for the Future