patient stories, Uncategorized

Being “Old” at 13: How I Learned to Live With Psoriatic Arthritis

I was constantly labeled the ‘hard’ or ‘interesting’ case and seemed to stump every doctor I visited. [5th grade through high school] My story: [Fast forward to post college] I held an IT consulting job that kept me on my toes 24/7/365. My pain came back in the form of hip pain that traveled down… Continue reading Being “Old” at 13: How I Learned to Live With Psoriatic Arthritis

Biohacking, lifestyle, patient stories, Uncategorized

DIY: What to Do with Information Overload

A Scientist Meets a Naturopath  I am not sure why, but I expected a personalized, spa-like center, similar to a yoga studio or an acupuncture office without the usual waiting times. Instead, I was greeted with a busy conventional looking office with phones ringing, too many helpers squished in a small front office and lots… Continue reading DIY: What to Do with Information Overload

autoimmune research, patient stories, Uncategorized

Autoimmunity Voices

About Us: Although digital health commands $4B in funding, autoimmune diseases have remained wallflowers at the party. So, how do we make this lonely world of autoimmune disease not so lonely? Currently, there is a huge unmet need in autoimmune disease. These not-obvious - under the surface - invisible - diseases cause 50 million patients… Continue reading Autoimmunity Voices

patient stories, Uncategorized

Believe It or Not: Real Experiences of Autoimmune Disease

By Tiffany Simms, Bonnie Feldman, and Ellen M Martin Why are the lonely voices of autoimmune disease so lonely? What compelled us to coin this name? Autoimmune disease is underserved, overlooked, and under-appreciated. Due to the invisible nature of autoimmune diseases, many of its patients look normal and healthy. This presents a challenge for patients’… Continue reading Believe It or Not: Real Experiences of Autoimmune Disease

autoimmune research, digital health, patient stories

#WhatIf We Could Think Differently For Autoimmunity – MedXAutoimmune

[View the story “#WhatIf We Could Think Differently for Autoimmunity - Stanford MedX 2015” on Storify]

autoimmune research, Uncategorized

Why Is Autoimmune Disease Underserved?

View the slides below to discover why autoimmune disease is underserved, and how this can be changed: https://www.slideshare.net/DrBonnie360/why-is-autoimmune-disease-underserved

patient stories, Uncategorized

Surprise, Surprise

“Out of the blue, I woke up one day and my eyes were literally stuck shut. Once I was able to get them open, I was terrified by what I saw in the mirror…red, swollen, very sore looking eyes. I immediately went to see an eye doctor, who prescribed me eye drops and sent me… Continue reading Surprise, Surprise

autoimmune research, patient stories, Uncategorized

The Celiac Disease Foundation: Raising Awareness and Promoting Research

Elaine Monarch suffered from a mysterious illness for most of her adult life.  It was only in her 50s that she received an accurate diagnosis: celiac disease (CD). CD is an autoimmune disease that causes damage to the small intestine when a person eats gluten, a protein found in common grains like wheat. Ten years… Continue reading The Celiac Disease Foundation: Raising Awareness and Promoting Research