patient stories, Uncategorized

Being “Old” at 13

I was constantly labeled the ‘hard’ or ‘interesting’ case and seemed to stump every doctor I visited. [5th grade through high school] My story: [Fast forward to post college] I held an IT consulting job that kept me on my toes 24/7/365. My pain came back in the form of hip pain that traveled down… Continue reading Being “Old” at 13

Biohacking, lifestyle, patient stories, Uncategorized

DIY: What to Do with Information Overload

A Scientist Meets a Naturopath  I am not sure why, but I expected a personalized, spa-like center, similar to a yoga studio or an acupuncture office without the usual waiting times. Instead, I was greeted with a busy conventional looking office with phones ringing, too many helpers squished in a small front office and lots… Continue reading DIY: What to Do with Information Overload

autoimmune research, patient stories, Uncategorized

Autoimmunity Voices

About Us: Although digital health commands $4B in funding, autoimmune diseases have remained wallflowers at the party. So, how do we make this lonely world of autoimmune disease not so lonely? Currently, there is a huge unmet need in autoimmune disease. These not-obvious - under the surface - invisible - diseases cause 50 million patients… Continue reading Autoimmunity Voices

patient stories, Uncategorized

Believe It or Not

By Tiffany Simms, Bonnie Feldman, and Ellen M Martin Why are the lonely voices of autoimmune disease so lonely? What compelled us to coin this name? Autoimmune disease is underserved, overlooked, and under-appreciated. Due to the invisible nature of autoimmune diseases, many of its patients look normal and healthy. This presents a challenge for patients’… Continue reading Believe It or Not

autoimmune research, digital health, patient stories

#WhatIf We Could Think Differently For Autoimmunity – MedXAutoimmune

[View the story “#WhatIf We Could Think Differently for Autoimmunity - Stanford MedX 2015” on Storify]

autoimmune research, digital health, Uncategorized

Becoming Visible

By Tiffany Simms and Bonnie Feldman “My doctors really didn’t have an answer” “The entire time my family doctor had no answer as to what was wrong with me” “No one in 7 years had ever thought to test me for an autoimmune disease” “The hospital staff thought I was faking it” “‘It’s different for… Continue reading Becoming Visible

autoimmune research, Uncategorized

Why Is Autoimmune Disease Underserved?

View the slides below to discover why autoimmune disease is underserved, and how this can be changed: https://www.slideshare.net/DrBonnie360/why-is-autoimmune-disease-underserved

patient stories, Uncategorized

Surprise, Surprise

“Out of the blue, I woke up one day and my eyes were literally stuck shut. Once I was able to get them open, I was terrified by what I saw in the mirror…red, swollen, very sore looking eyes. I immediately went to see an eye doctor, who prescribed me eye drops and sent me… Continue reading Surprise, Surprise

autoimmune research, patient stories, Uncategorized

The Celiac Disease Foundation: Raising Awareness and Promoting Research

Elaine Monarch suffered from a mysterious illness for most of her adult life.  It was only in her 50s that she received an accurate diagnosis: celiac disease (CD). CD is an autoimmune disease that causes damage to the small intestine when a person eats gluten, a protein found in common grains like wheat. Ten years… Continue reading The Celiac Disease Foundation: Raising Awareness and Promoting Research