“I think the idea of improving patient care for those with autoimmune diseases is incredibly important,” - anonymous patient participant in our “Autoimmunity Voices” survey. Our survey of autoimmune patients’ experiences revealed a common theme: the need to improve patient care. As Your Autoimmunity Connection, we share this same goal. Patient care does not just… Continue reading Spotlight on Psoriasis & Psoriatic Arthritis
As a chronic disease patient, my dream is of a world where it doesn't take an average of three years and five doctors for patients to get a diagnosis for their autoimmune disease. Some 117 million people, or about half of all US adults, are living with one or more chronic health conditions, and many of them… Continue reading Your Autoimmunity Connection Newsletter
Why Should You Take Steps to be Healthy When you Already Feel Healthy? What is the Key to Healing? DrBonnie360, AutoimmuneMom, We Are Curious Inc., JIYO, and HopeLab come together to bring SXSW the secrets for your HacktoHeal [View the story “#HacktoHeal at #SXSW ” on Storify]
By Tiffany Simms, Bonnie Feldman, and Ellen M Martin Why are the lonely voices of autoimmune disease so lonely? What compelled us to coin this name? Autoimmune disease is underserved, overlooked, and under-appreciated. Due to the invisible nature of autoimmune diseases, many of its patients look normal and healthy. This presents a challenge for patients’… Continue reading Believe It or Not: Real Experiences of Autoimmune Disease
From Stanford Medicine X 2015 Listen to the talk here.
By Tiffany SimmsIn light of our enormous autoimmunity research, we understand how hard it is to face 67 slides of only article and book citations with no context. So! We’ve put together a table of contents with a brief abstract for each section to aid your exploration. The Invisible Epidemic: Incidence and Prevalence Autoimmune Diseases… Continue reading Our Guide to Bridging the Autoimmune Abyss through New Discoveries
Ever wonder why family genetics don’t always make sense? According to the increasing number of publications on epigenetics, shown above, there may be both environmental and social influences involved. What is Epigenetics? Epigenetics is the change in gene expression that results from environmental and social causes that are not related to the DNA itself. "The… Continue reading You May Be More Than Your Genes