autoimmune research, patient stories, Uncategorized

Coming Out of the Closet

By: Tiffany Simms, Bonnie Feldman, and Ellen M Martin  Autoimmunity has spent a long time in the shadows. It has a history of being under-served, under-recognized, and under-funded.  However, things are looking up. Just this past year, we’ve had hope from complementary medicine coming to the forefront and personalized nutrition getting easier. While these improvements… Continue reading Coming Out of the Closet

patient stories, Uncategorized

Believe It or Not: Real Experiences of Autoimmune Disease

By Tiffany Simms, Bonnie Feldman, and Ellen M Martin Why are the lonely voices of autoimmune disease so lonely? What compelled us to coin this name? Autoimmune disease is underserved, overlooked, and under-appreciated. Due to the invisible nature of autoimmune diseases, many of its patients look normal and healthy. This presents a challenge for patients’… Continue reading Believe It or Not: Real Experiences of Autoimmune Disease

autoimmune research, digital health, patient stories, Uncategorized

Bridging the Autoimmune Abyss

From Stanford Medicine X 2015 Listen to the talk here.

autoimmune research, patient stories

Bridging the Autoimmune Abyss at #MedX 2015

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patient stories

Finding Resilience in Adversity

-How has your life been since having multiple autoimmune diseases?- Like many autoimmune patients, I have my ups and downs, but I have been very fortunate to be able to lead an active life, in many senses of the word. I am able to get outside into nature almost every week, I am able to… Continue reading Finding Resilience in Adversity

autoimmune research, digital health, microbiome

Bridging the Autoimmune Abyss – Exploring the Connection between Food and Digestive Diseases with MyGiHealth

By Bonnie Feldman and Ellen M Martin Digital health is filled with promise, but for autoimmune patients many gaps persist. With an eye to bridging those gaps, I recently attended two very different conferences: The Interdisciplinary Autoimmune Summit was a continuing education meeting to help practicing physicians better treat complex autoimmune patients using a multidisciplinary,… Continue reading Bridging the Autoimmune Abyss – Exploring the Connection between Food and Digestive Diseases with MyGiHealth

autoimmune research, digital health, patient stories, Uncategorized

Crowd Power

Bringing a fresh approach to collaboration and sharing of ideas, HealthIMPACT West, did not include lectures or powerpoints. Instead, when Megan Antonelli first envisioned her goals for Purpose events, she wanted to bring about a “face to face” meeting where a shared focus could bring forth “new insights, a clearer sense of purpose, and solutions that… Continue reading Crowd Power

patient stories, Uncategorized

How Do You See The Invisible?

  Like heart disease, diabetes, and many other chronic diseases,  autoimmune disease is an invisible disease. –Any memorable moments while being tested?– “The most memorable and frustrating time for me was before I was diagnosed with Crohn’s Disease. I was in and out of the ER three times in one weekend because the doctors kept… Continue reading How Do You See The Invisible?