patient stories, Uncategorized

Believe It or Not

By Tiffany Simms, Bonnie Feldman, and Ellen M Martin Why are the lonely voices of autoimmune disease so lonely? What compelled us to coin this name? Autoimmune disease is underserved, overlooked, and under-appreciated. Due to the invisible nature of autoimmune diseases, many of its patients look normal and healthy. This presents a challenge for patients’… Continue reading Believe It or Not

autoimmune research, digital health, Uncategorized

Becoming Visible

By Tiffany Simms and Bonnie Feldman “My doctors really didn’t have an answer” “The entire time my family doctor had no answer as to what was wrong with me” “No one in 7 years had ever thought to test me for an autoimmune disease” “The hospital staff thought I was faking it” “‘It’s different for… Continue reading Becoming Visible

autoimmune research, Uncategorized

Why Is Autoimmune Disease Underserved?

View the slides below to discover why autoimmune disease is underserved, and how this can be changed: https://www.slideshare.net/DrBonnie360/why-is-autoimmune-disease-underserved

patient stories, Uncategorized

It’s Never Too Late – Conquering Fear of Public Speaking

They say it takes a village. In my case it took a village’s worth of coaches! To do what you wonder? To overcome my fear of public speaking. Most people who know me will be very surprised – it’s been a well-kept secret. I am a real people person, who loves networking and connecting people and… Continue reading It’s Never Too Late – Conquering Fear of Public Speaking

digital health, patient stories, Uncategorized

It’s Never Too Late – Finding Community Support is Key

During the past few months, many of my professional colleagues and friends have asked me how I have been able to tap the resilience needed to reinvent myself many times. Most recently, I have been lucky enough to find several supportive communities. As an adolescent girl who loved math and science before it was cool,… Continue reading It’s Never Too Late – Finding Community Support is Key