About Us: Although digital health commands $4B in funding, autoimmune diseases have remained wallflowers at the party. So, how do we make this lonely world of autoimmune disease not so lonely? Currently, there is a huge unmet need in autoimmune disease. These not-obvious - under the surface - invisible - diseases cause 50 million patients… Continue reading Autoimmunity Voices
Briane has fibromyalgia and is currently a UCLA student who started up a community group called You Are Not Alone. Her story chronicles the challenges of an invisible disease; if she had known about fibromyalgia earlier, perhaps she could’ve prevented the intensity. Yet, despite all the pain and cut backs from fibromyalgia, her perspective became… Continue reading Forced to Slow Down: Living with an Invisible Disease in College
Like heart disease, diabetes, and many other chronic diseases, autoimmune disease is an invisible disease. –Any memorable moments while being tested?– “The most memorable and frustrating time for me was before I was diagnosed with Crohn’s Disease. I was in and out of the ER three times in one weekend because the doctors kept… Continue reading How Do You See The Invisible?
“Out of the blue, I woke up one day and my eyes were literally stuck shut. Once I was able to get them open, I was terrified by what I saw in the mirror…red, swollen, very sore looking eyes. I immediately went to see an eye doctor, who prescribed me eye drops and sent me… Continue reading Surprise, Surprise
– “How has your life changed after diagnosis?” – “Before diagnosis, I was a very active person. Immediately after diagnosis, my life changed drastically. My activity level decreased to the point I was basically housebound and on many days, I was bed bound. In the eighteen years that have passed, I have been able to… Continue reading The World Isn’t an Easy Place
When I was first diagnosed with multiple autoimmune diseases, my first thought was, “What am I going to do?” My doctors really didn’t have an answer. Next, I thought, “Why me?” Again, there were no true answers. My thinking stayed in the “Why me?” stage for many years along with anger and depression. Slowly, I… Continue reading Why Me?