About Us: Although digital health commands $4B in funding, autoimmune diseases have remained wallflowers at the party. So, how do we make this lonely world of autoimmune disease not so lonely? Currently, there is a huge unmet need in autoimmune disease. These not-obvious - under the surface - invisible - diseases cause 50 million patients… Continue reading Autoimmunity Voices
-How has your life been since having multiple autoimmune diseases?- Like many autoimmune patients, I have my ups and downs, but I have been very fortunate to be able to lead an active life, in many senses of the word. I am able to get outside into nature almost every week, I am able to… Continue reading Finding Resilience in Adversity
By Tiffany Simms and Bonnie Feldman “My doctors really didn’t have an answer” “The entire time my family doctor had no answer as to what was wrong with me” “No one in 7 years had ever thought to test me for an autoimmune disease” “The hospital staff thought I was faking it” “‘It’s different for… Continue reading Becoming Visible
Following Sara’s story, Surprise Surprise, we delve into Sara’s 7 year challenge to getting an official diagnosis. “My official diagnosis’ were derived in the Fall of 2014. It was after my 10 year old niece said that I had a bald spot behind my right ear. Because of the location of it, I had no… Continue reading Half Full
“Out of the blue, I woke up one day and my eyes were literally stuck shut. Once I was able to get them open, I was terrified by what I saw in the mirror…red, swollen, very sore looking eyes. I immediately went to see an eye doctor, who prescribed me eye drops and sent me… Continue reading Surprise, Surprise
– “How has your life changed after diagnosis?” – “Before diagnosis, I was a very active person. Immediately after diagnosis, my life changed drastically. My activity level decreased to the point I was basically housebound and on many days, I was bed bound. In the eighteen years that have passed, I have been able to… Continue reading The World Isn’t an Easy Place
When I was first diagnosed with multiple autoimmune diseases, my first thought was, “What am I going to do?” My doctors really didn’t have an answer. Next, I thought, “Why me?” Again, there were no true answers. My thinking stayed in the “Why me?” stage for many years along with anger and depression. Slowly, I… Continue reading Why Me?