Spotlights on Autoimmune Diseases, Uncategorized

Spotlight on Sjogren’s Syndrome

Written by: Bonnie Feldman, DDS, MBA, Anna Simon, Ellen M. Martin Autoimmune disease is an “invisible epidemic.” Despite affecting roughly 16% of the US population, autoimmunity remains under-recognized, under-researched and under-served. To combat this lack of awareness and to connect patients, families, and caregivers with useful resources, we at Your Autoimmunity Connection are publishing a… Continue reading Spotlight on Sjogren’s Syndrome

autoimmune research, patient stories, Uncategorized

Autoimmunity Voices

About Us: Although digital health commands $4B in funding, autoimmune diseases have remained wallflowers at the party. So, how do we make this lonely world of autoimmune disease not so lonely? Currently, there is a huge unmet need in autoimmune disease. These not-obvious - under the surface - invisible - diseases cause 50 million patients… Continue reading Autoimmunity Voices

patient stories

Finding Resilience in Adversity

-How has your life been since having multiple autoimmune diseases?- Like many autoimmune patients, I have my ups and downs, but I have been very fortunate to be able to lead an active life, in many senses of the word. I am able to get outside into nature almost every week, I am able to… Continue reading Finding Resilience in Adversity

patient stories, Uncategorized

Half Full

Following Sara’s story, Surprise Surprise, we delve into Sara’s 7 year challenge to getting an official diagnosis. “My official diagnosis’ was derived in the Fall of 2014. It was after my 10-year-old niece said that I had a bald spot behind my right ear. Because of the location of it, I had no idea that… Continue reading Half Full

patient stories, Uncategorized

Surprise, Surprise

“Out of the blue, I woke up one day and my eyes were literally stuck shut. Once I was able to get them open, I was terrified by what I saw in the mirror…red, swollen, very sore looking eyes. I immediately went to see an eye doctor, who prescribed me eye drops and sent me… Continue reading Surprise, Surprise

patient stories, Uncategorized

The World Isn’t an Easy Place

– “How has your life changed after diagnosis?” – “Before diagnosis, I was a very active person.  Immediately after diagnosis, my life changed drastically.  My activity level decreased to the point I was basically housebound and on many days, I was bed bound. In the eighteen years that have passed, I have been able to… Continue reading The World Isn’t an Easy Place