patient stories, Uncategorized

The Autoimmune Masquerade

Continuing Briane’s story, she gives us another perspective on college life and autoimmunity.  From her struggles, sacrifices, and positive outlook, Briane turns her story into one of inspiration and advice. –Do you have everyday struggles?– You know that feeling when you have a cold and your body is extra achy and tired because it’s using… Continue reading The Autoimmune Masquerade

patient stories, Uncategorized

It’s Not Contagious!

Following Will, our second UCLA student, Tia, lends us her voice in describing the challenges of living with and caring for psoriasis. –Did you know about Psoriasis before you had it?– I had no idea what psoriasis was! The first time I ever showed symptoms I just had one small spot, and my doctor thought… Continue reading It’s Not Contagious!

patient stories

Some Men Suffer Silently

[Will on the far right] I had never heard of psoriasis previous to my diagnosis. I had no indication of the coming onset of my autoimmune disease. However, my mother is diagnosed with mild Crohn’s Disease, and I had digestion issues as a child, so there was concern as to this being an issue. My grandfather also has mild psoriasis that I… Continue reading Some Men Suffer Silently

patient stories, Uncategorized

How Do You See The Invisible?

  Like heart disease, diabetes, and many other chronic diseases,  autoimmune disease is an invisible disease. –Any memorable moments while being tested?– “The most memorable and frustrating time for me was before I was diagnosed with Crohn’s Disease. I was in and out of the ER three times in one weekend because the doctors kept… Continue reading How Do You See The Invisible?

patient stories, Uncategorized

Real or Not Real

[Summer of 2011] One morning I woke up and was paralyzed by aching throughout my entire body. Any move I made caused excruciating pain in my joints. I could not even turn over in my bed without feeling agonizing discomfort. I became completely reliant on my mother to do everything for me. I gained twenty… Continue reading Real or Not Real

patient stories, Uncategorized

Half Full

Following Sara’s story, Surprise Surprise, we delve into Sara’s 7 year challenge to getting an official diagnosis. “My official diagnosis’ were derived in the Fall of 2014. It was after my 10 year old niece said that I had a bald spot behind my right ear. Because of the location of it, I had no… Continue reading Half Full

patient stories, Uncategorized

Surprise, Surprise

“Out of the blue, I woke up one day and my eyes were literally stuck shut. Once I was able to get them open, I was terrified by what I saw in the mirror…red, swollen, very sore looking eyes. I immediately went to see an eye doctor, who prescribed me eye drops and sent me… Continue reading Surprise, Surprise

patient stories, Uncategorized

The World Isn’t an Easy Place

– “How has your life changed after diagnosis?” – “Before diagnosis, I was a very active person.  Immediately after diagnosis, my life changed drastically.  My activity level decreased to the point I was basically housebound and on many days, I was bed bound. In the eighteen years that have passed, I have been able to… Continue reading The World Isn’t an Easy Place

patient stories, Uncategorized

Why Me?

When I was first diagnosed with multiple autoimmune diseases, my first thought was, “What am I going to do?”  My doctors really didn’t have an answer.  Next, I thought, “Why me?”  Again, there were no true answers.  My thinking stayed in the “Why me?” stage for many years along with anger and depression. Slowly, I… Continue reading Why Me?