patient stories

Some Men Suffer Silently

[Will on the far right] I had never heard of psoriasis previous to my diagnosis. I had no indication of the coming onset of my autoimmune disease. However, my mother is diagnosed with mild Crohn’s Disease, and I had digestion issues as a child, so there was concern as to this being an issue. My grandfather also has mild psoriasis that I… Continue reading Some Men Suffer Silently

digital health, lifestyle, patient stories, Uncategorized

Tinkering, Tracking, & Tweaking

Following Lilly’s Journey in discovering her autoimmune disease and struggling through diagnosis, she lends us her voice in experimental lifestyle modification and what could most help herself and the autoimmune community. –Have you seen both traditional medicine practitioners and/or integrative alternative medicine practitioners?– I have been to both traditional medicine practitioners as well as integrative/alternative… Continue reading Tinkering, Tracking, & Tweaking

patient stories, Uncategorized

How Do You See The Invisible?

  Like heart disease, diabetes, and many other chronic diseases,  autoimmune disease is an invisible disease. –Any memorable moments while being tested?– “The most memorable and frustrating time for me was before I was diagnosed with Crohn’s Disease. I was in and out of the ER three times in one weekend because the doctors kept… Continue reading How Do You See The Invisible?

patient stories, Uncategorized

Autoimmune Disease as an Invisible Illness

[Summer of 2011] One morning I woke up and was paralyzed by aching throughout my entire body. Any move I made caused excruciating pain in my joints. I could not even turn over in my bed without feeling agonizing discomfort. I became completely reliant on my mother to do everything for me. I gained twenty… Continue reading Autoimmune Disease as an Invisible Illness

patient stories, Uncategorized

Surprise, Surprise

“Out of the blue, I woke up one day and my eyes were literally stuck shut. Once I was able to get them open, I was terrified by what I saw in the mirror…red, swollen, very sore looking eyes. I immediately went to see an eye doctor, who prescribed me eye drops and sent me… Continue reading Surprise, Surprise

patient stories, Uncategorized

The World Isn’t an Easy Place

– “How has your life changed after diagnosis?” – “Before diagnosis, I was a very active person.  Immediately after diagnosis, my life changed drastically.  My activity level decreased to the point I was basically housebound and on many days, I was bed bound. In the eighteen years that have passed, I have been able to… Continue reading The World Isn’t an Easy Place