Spotlights on Autoimmune Diseases, Uncategorized

Spotlight on Ankylosing Spondylitis (AS)

Written by: Bonnie Feldman, DDS, MBA, Anna Simon, Ellen M. Martin Autoimmune disease is an “invisible epidemic.” Despite affecting roughly 16% of the US population, autoimmunity remains under-recognized, under-researched and under-served. To combat this lack of awareness, and to connect patients, families, and caregivers with useful resources, we at Your Autoimmunity Connection are publishing a… Continue reading Spotlight on Ankylosing Spondylitis (AS)

autoimmune research, Uncategorized

The Future of the Autoimmunity Continuum

Written by: Bonnie Feldman, DDS, MBA, Ellen M. Martin, Hailey Motooka, Sarah Hinton The words: Crohn’s, Lupus, and Celiac, contain meanings that differ for everyone, depending on our preconceptions or lack thereof. To some people, these are unfamiliar words that could pass as Pokemon names or Scrabble plays. To others, they are medical jargon used… Continue reading The Future of the Autoimmunity Continuum

Personal Experiments

Part 2: Updating my Visual Health Story with Pictal Health

Written by: Bonnie Feldman, DDS, MBA, and Hailey Motooka As I prepare to visit my rheumatologist next week for a scheduled appointment, I am simultaneously eager and apprehensive to share with her my health updates. This is merely a pre-appointment ritual. My eagerness derives from my persistent desire to understand and overcome my chronic health… Continue reading Part 2: Updating my Visual Health Story with Pictal Health

Spotlights on Autoimmune Diseases, Uncategorized

Spotlight on Hashimoto’s Disease

Written by: Bonnie Feldman, DDS, MBA, Anna Simon, Ellen M. Martin It took me 5 years and 12 specialists to be diagnosed with Celiac and Hashimoto’s. I want the next person to be diagnosed on the first doctor. - anonymous patient participant in our Autoimmunity Voices survey. Autoimmune disease is an “invisible epidemic.” Despite affecting roughly… Continue reading Spotlight on Hashimoto’s Disease

Personal Experiments, Uncategorized

Seqster Creates Personal Health Record for Autoimmune Patients

Written by: Bonnie Feldman, DDS, MBA, and Hailey Motooka Many patients, like myself, suffering from autoimmune diseases understand the struggle of having countless doctor and specialist appointments throughout the year. Symptoms of autoimmune diseases can vary significantly between individuals depending upon genetic, behavioral, and environmental factors. This spectrum of disease symptoms and severity often leaves… Continue reading Seqster Creates Personal Health Record for Autoimmune Patients

Spotlights on Autoimmune Diseases, Uncategorized

Spotlight on Ulcerative Colitis

Written by: Bonnie Feldman, DDS, MBA, Anna Simon, Ellen M. Martin "My daughter was diagnosed with ulcerative colitis at age 5, now 6. I am a physiotherapist working in MSK, occasionally treating RA. In my previous 'life' I was a biochemist. My daughter's diagnosis and subsequent reading made me re-think my view of health and disease.… Continue reading Spotlight on Ulcerative Colitis

autoimmune research, digital health, lifestyle, mind-body, patient guides, Uncategorized

How to be the CEO of Your Own Health: A Patient Guide

As a chronic disease patient, navigating the healthcare system can feel like fending for yourself in an unfamiliar big city - most other people seem to know their way around while you stand by, lost and confused. You are not alone. Some 117 million people, or about half of all US adults, are living with… Continue reading How to be the CEO of Your Own Health: A Patient Guide

autoimmune research, lifestyle, mind-body, movement therapy, Uncategorized

The Feldenkrais Method: Finding Your Personal Power to Reduce Chronic Pain

“The only thing permanent about our behavior patterns, is our belief that they are so.” - Dr. Moshe Feldenkrais I have been going to various types of physical therapy weekly for thirty years. This “fearless experimenter” found that despite continually seeking new ways to improve my day-to-day health, I was striking out with my chronic… Continue reading The Feldenkrais Method: Finding Your Personal Power to Reduce Chronic Pain

autoimmune research, Biohacking, lifestyle, mind-body, movement therapy, Uncategorized

Tai Chi & Qi Gong as Movement Therapy

Over the past several generations, stress levels and chronic disease levels have continued to rise. According to the American Psychology Association, On average, younger adults are more likely than older generations to report that their stress has increased in the past year. 47% of all Americans say they are concerned with the amounts of stress in… Continue reading Tai Chi & Qi Gong as Movement Therapy

food matters, lifestyle, Uncategorized

Vegetables: A Diet Must-Have!

Vegetables have always been the vanguard to healthy eating. Seemingly since the dawn of time, parents have struggled to ensure their resistant children get enough greens, at least until the point when they realize that eating these bland, sometimes bitter, leaves are actually a worthy sacrifice in the name of good health. And yes, while… Continue reading Vegetables: A Diet Must-Have!