Spotlights on Autoimmune Diseases, Uncategorized

Spotlight on Psoriasis & Psoriatic Arthritis

“I think the idea of improving patient care for those with autoimmune diseases is incredibly important,” - anonymous patient participant in our “Autoimmunity Voices” survey. Our survey of autoimmune patients’ experiences revealed a common theme: the need to improve patient care. As Your Autoimmunity Connection, we share this same goal. Patient care does not just… Continue reading Spotlight on Psoriasis & Psoriatic Arthritis

autoimmune research, digital health, Uncategorized

Your Autoimmunity Connection Newsletter

As a chronic disease patient, my dream is of a world where it doesn't take an average of three years and five doctors for patients to get a diagnosis for their autoimmune disease. Some 117 million people, or about half of all US adults, are living with one or more chronic health conditions, and many of them… Continue reading Your Autoimmunity Connection Newsletter

autoimmune research, digital health, patient stories, Uncategorized

Crowd Power

Bringing a fresh approach to collaboration and sharing of ideas, HealthIMPACT West, did not include lectures or powerpoints. Instead, when Megan Antonelli first envisioned her goals for Purpose events, she wanted to bring about a “face to face” meeting where a shared focus could bring forth “new insights, a clearer sense of purpose, and solutions that… Continue reading Crowd Power

autoimmune research, digital health, patient stories, Uncategorized

The Power of Story and Listening at the 8th Annual Body Computing Conference

What can healthcare learn from Hollywood? Do you feel inspired by a good story? We all do, “because our brains are hard wired for stories,” explains Ed Saxon at the 8th Annual Body Computing Conference. “Stories are how we learn about history, morality and science – i.e. Issac Newton.” Our brain is the “biggest neural pathway… Continue reading The Power of Story and Listening at the 8th Annual Body Computing Conference