“I think the idea of improving patient care for those with autoimmune diseases is incredibly important,” - anonymous patient participant in our “Autoimmunity Voices” survey. Our survey of autoimmune patients’ experiences revealed a common theme: the need to improve patient care. As Your Autoimmunity Connection, we share this same goal. Patient care does not just… Continue reading Spotlight on Psoriasis & Psoriatic Arthritis
As a chronic disease patient, my dream is of a world where it doesn't take an average of three years and five doctors for patients to get a diagnosis for their autoimmune disease. Some 117 million people, or about half of all US adults, are living with one or more chronic health conditions, and many of them… Continue reading Your Autoimmunity Connection Newsletter
Having a chronic disease does not mean that we are powerless in achieving our best states of health. In fact, maximizing our personal well-being may be well within our control! More resources are becoming available to help patients overcome their chronic symptoms. One of these valuable resources is Vida’s personalized coaching platform - an app… Continue reading The Power of Personalized Coaching
By: Tiffany Simms, Bonnie Feldman, Ellen M. Martin Autoimmunity is individually, statistically, institutionally invisible. Just reading the stats around autoimmune and chronic diseases could get you down in the dumps. Perhaps the worse part is that millions, probably billions, world-wide face this disease with a health care system that treats symptoms without looking at underlying… Continue reading Take Control of Your Own (Auto)Immune System
By Tiffany Simms, Bonnie Feldman, and Ellen M Martin While we wait for traditional medicine to catch up to our needs, will integrative practices be the way to go? Following Lilly, Julie, from It’s Just a Bad Day, further emphasizes how diet and lifestyle modifications have significantly improved her autoimmunity. Having done so much research on… Continue reading Tinkering and Tweaking with Self Care
A Pioneering Blueprint By Bonnie G. Feldman, Ellen M. Martin, and Tiffany Simms In researching the state of autoimmune disease from a patient perspective, I have uncovered multiple gaps across the care continuum. Despite the fact that at least 24-50 million1 Americans are living with autoimmune diseases and they are among the top ten causes… Continue reading Bridging the Autoimmune Abyss
Do you recognize the feeling of “butterflies?” We feel “butterflies” because the gut’s enteric nervous system, our “second brain,” houses 95% of the body’s serotonin. This same system also partially determines our mental state and plays a key role in contracting certain diseases. In fact, our brain and gut appear to be connected in significant ways. According to… Continue reading Can Science Explain Gut Feelings?
By Melinda Speckmann As a follow up to our Introduction, here is some in-depth reading to keep your brains blooming with life for a better understanding of what it means to stay sharp, stay well and overcome illness. Staying Sharp: Cognitive training allows individuals to stay sharp and keep our brains fit by improving various cognitive… Continue reading Using Digital Tools to Channel Our Minds: Bibliography