Spotlights on Autoimmune Diseases, Uncategorized

Spotlight on Crohn’s Disease

“I have been struggling with psoriasis for 36 years, and my daughter was recently diagnosed with Crohn’s. I would love to see cures for both in my lifetime”. A patient shared this quote with us back in 2015, when we surveyed autoimmune patients at Stanford Medicine X and shared some of their stories to help raise… Continue reading Spotlight on Crohn’s Disease

lifestyle

TEDxACU | The Single Most Valuable Legacy We Can Pass On

The Single Most Valuable Legacy We Can Pass On “He who has health, has hope. And he who has hope, has everything.” - Benjamin Franklin My recent TEDx talk reveals the reason self-care brings hope to the autoimmune community. With this call to action to take better care of ourselves today, we can make a… Continue reading TEDxACU | The Single Most Valuable Legacy We Can Pass On

lifestyle

The Healing Diet That Needs More TLC from Docs

For most of us, keeping an eye on our diets means trying our best not to gorge on all the leftover Halloween candy in one night or limiting the number of Big Macs we eat each month. But for people with Irritable Bowel Syndrome (IBS), Crohn’s Disease, Ulcerative Colitis, and gluten therapy-resistant Celiac disease, controlling… Continue reading The Healing Diet That Needs More TLC from Docs

autoimmune research, patient stories

Autoimmunity Voices

About Us: Although digital health commands $4B in funding, autoimmune diseases have remained wallflowers at the party. So, how do we make this lonely world of autoimmune disease not so lonely? Currently, there is a huge unmet need in autoimmune disease. These not-obvious - under the surface - invisible - diseases cause 50 million patients… Continue reading Autoimmunity Voices

autoimmune research, digital health

Crossing the Autoimmune Abyss – The Open Medicine Institute and Foundation

By Bonnie Feldman, Ellen M. Martin Sometimes I find the answers I am looking for in the most unlikely places! Listening to the Lonely Voices of Autoimmune Disease led me on a hunt to find emerging companies using data and digital tools to help the large and growing needs of the autoimmunity community. To my… Continue reading Crossing the Autoimmune Abyss – The Open Medicine Institute and Foundation

digital health, lifestyle, patient stories

Tinkering, Tracking, & Tweaking

Following Lilly’s Journey in discovering her autoimmune disease and struggling through diagnosis, she lends us her voice in experimental lifestyle modification and what could most help herself and the autoimmune community. –Have you seen both traditional medicine practitioners and/or integrative alternative medicine practitioners?– I have been to both traditional medicine practitioners as well as integrative/alternative… Continue reading Tinkering, Tracking, & Tweaking

patient stories

How Do You See The Invisible?

  Like heart disease, diabetes, and many other chronic diseases,  autoimmune disease is an invisible disease. –Any memorable moments while being tested?– “The most memorable and frustrating time for me was before I was diagnosed with Crohn’s Disease. I was in and out of the ER three times in one weekend because the doctors kept… Continue reading How Do You See The Invisible?

autoimmune research, microbiome

What Can Your Poop Do For You?

With antibiotic resistance on the rise, we are in dire need for alternative treatments. Today we discuss one therapy in particular, Fecal Transplants. In this post we will reference different journal articles, blogs, and studies to give you a better idea of what this new therapy is all about. Early Evidence in Crohns A remarkable… Continue reading What Can Your Poop Do For You?

patient stories

Real or Not Real

[Summer of 2011] One morning I woke up and was paralyzed by aching throughout my entire body. Any move I made caused excruciating pain in my joints. I could not even turn over in my bed without feeling agonizing discomfort. I became completely reliant on my mother to do everything for me. I gained twenty… Continue reading Real or Not Real

autoimmune research, patient stories

The Lonely Voices of Autoimmune Disease @StanfordMedX

Explore a recap of DrBonnie360's Stanford MedicineX 2014 presentation, highlighting the need to use data and digital tools to ignite precision medicine in autoimmune disease. Click the link below: //storify.com/DrBonnie360/stanford-medicine-x-2014/embed