“I think the idea of improving patient care for those with autoimmune diseases is incredibly important,” - anonymous patient participant in our “Autoimmunity Voices” survey. Our survey of autoimmune patients’ experiences revealed a common theme: the need to improve patient care. As Your Autoimmunity Connection, we share this same goal. Patient care does not just… Continue reading Spotlight on Psoriasis & Psoriatic Arthritis
I was constantly labeled the ‘hard’ or ‘interesting’ case and seemed to stump every doctor I visited. [5th grade through high school] My story: [Fast forward to post college] I held an IT consulting job that kept me on my toes 24/7/365. My pain came back in the form of hip pain that traveled down… Continue reading Being “Old” at 13
In this day and age of social connectivity and communication, ideas and movements have the potential to spread like wildfire. You could say that possibly anything could go viral, even a diet. Traditionally, diets are not something you would expect to go viral, but with the tidal wave of health conscious consumers, fad diets have become… Continue reading Ancient Eating Gone Wild: Paleo, Fact or Fiction?
For most of us, keeping an eye on our diets means trying our best not to gorge on all the leftover Halloween candy in one night or limiting the number of Big Macs we eat each month. But for people with Irritable Bowel Syndrome (IBS), Crohn’s Disease, Ulcerative Colitis, and gluten therapy-resistant Celiac disease, controlling… Continue reading The Healing Diet That Needs More TLC from Docs
Turning Autoimmune Dreams into Reality Being a Big Vision entrepreneur is a ride on an emotional rollercoaster. My vision is of a connected world of personalized care for autoimmune patients that uses data and digital tools to reshape research, diagnosis and clinical practice for autoimmune disease. This, of course, is outside today’s mainstream thinking, which… Continue reading Ahead of My Time or Out of My Mind?
Do you know there is an invisible epidemic affecting millions, possibly billions worldwide? The worst part is that number is increasing and it’s increasing in children. Early this year, we began a series on autoimmune disease that illustrates its underserved and invisible nature. This invisible disease presents a large and growing opportunity to help millions today… Continue reading Once the Fog Lifts…
A Scientist Meets a Naturopath I am not sure why, but I expected a personalized, spa-like center, similar to a yoga studio or an acupuncture office without the usual waiting times. Instead, I was greeted with a busy conventional looking office with phones ringing, too many helpers squished in a small front office and lots… Continue reading DIY: What to Do with Information Overload
Born with a sunny disposition and high energy, I found myself appreciating the concept of allocating my limited energy when a common virus, the chicken pox, attacked my fragile immune system. With my balance out of whack and the stories of many Spoonies on my mind, I began to wonder, “Why is it so hard to… Continue reading DIY Fatigue Buster
By Bonnie Feldman, Tiffany Simms and Ellen M Martin Through our surveys of autoimmune patients and our Stanford Medicine X workshop, we found many autoimmune patients feeling ill-used and underserved by conventional medical care. Many other blogs and web sites also spotlight these issues across the autoimmune community. Widespread are feelings that no one was… Continue reading Personalized Nutrition to Modify Autoimmune Symptoms
By Tiffany Simms, Bonnie Feldman, and Ellen M Martin Why are the lonely voices of autoimmune disease so lonely? What compelled us to coin this name? Autoimmune disease is underserved, overlooked, and under-appreciated. Due to the invisible nature of autoimmune diseases, many of its patients look normal and healthy. This presents a challenge for patients’… Continue reading Believe It or Not