Your (Auto)Immunity Connection
Written by Bonnie Feldman, DDS, MBA, Ellen M. Martin, and Hailey Motooka Do you have a passion project that sometimes drives you to do unexpected things? For many years I have been dreaming of improving research, diagnosis and care for autoimmunity by bringing the best of conventional, integrative and digital medicine to autoimmune patients. And… Continue reading The Allegheny Health Network Autoimmunity Institute — How my Crazy Adventure Found New Optimism
For over 30 years, I was an obedient physical therapy patient. I went to PT once a week, week after week, and never asked why I was not getting better. Every so often I changed physical therapists, hoping to notice progress and alleviate my chronic pain. But my symptoms never showed improvement. Why did it… Continue reading A Guide to Movement Therapy
Written by: Bonnie Feldman, DDS, MBA, Anna Simon, Ellen M. Martin Obtaining appropriate diagnosis, effective treatment, and quality care for autoimmune and chronic conditions is often quite challenging. If you have experienced such struggles, then you are not alone. Statistics show that over 50 million adults in the US suffer from autoimmune diseases… so why does… Continue reading Spotlight on Scleroderma
"After decades of my symptoms being dismissed by multiple doctors, I found power in educating myself and advocating for my own needs. We need to make quality, patient-centered care more readily available; patients should never feel alone in their fight for wellbeing." - Anonymous patient participant in our Autoimmunity Voices survey. Obtaining appropriate diagnosis, effective… Continue reading Spotlight on Lupus
“I think the idea of improving patient care for those with autoimmune diseases is incredibly important,” - anonymous patient participant in our “Autoimmunity Voices” survey. Our survey of autoimmune patients’ experiences revealed a common theme: the need to improve patient care. As Your Autoimmunity Connection, we share this same goal. Patient care does not just… Continue reading Spotlight on Psoriasis & Psoriatic Arthritis
As a chronic disease patient, my dream is of a world where it doesn't take an average of three years and five doctors for patients to get a diagnosis for their autoimmune disease. Some 117 million people, or about half of all US adults, are living with one or more chronic health conditions, and many of them… Continue reading Your Autoimmunity Connection Newsletter
Written by: Bonnie Feldman, DDS, MBA, Ellen M. Martin, Kelsey O’Donoghue For over a decade I consistently saw a physical therapist to help cope with my chronic pain, but never felt fully satisfied with my results. I thought I was doing everything within my power to alleviate my symptoms, but it was still not enough… Continue reading Is Kundalini Yoga the Movement Therapy You’ve Been Looking For?
Over the last two years, we’ve continuously worked to help improve autoimmune care. From 2014 to 2016, we’ve made great progress but the unaddressed needs and opportunities are greater. Now, more than ever, is the time to address the autoimmune disease epidemic. Using the convergence in science, tech, and patient demand, we can begin to… Continue reading Reversing the Invisible Epidemic of Autoimmune Disease
Turning Autoimmune Dreams into Reality Being a Big Vision entrepreneur is a ride on an emotional rollercoaster. My vision is of a connected world of personalized care for autoimmune patients that uses data and digital tools to reshape research, diagnosis and clinical practice for autoimmune disease. This, of course, is outside today’s mainstream thinking, which… Continue reading Ahead of My Time or Out of My Mind?
By Bonnie Feldman, Ellen M. Martin Sometimes I find the answers I am looking for in the most unlikely places! Listening to the Lonely Voices of Autoimmune Disease led me on a hunt to find emerging companies using data and digital tools to help the large and growing needs of the autoimmunity community. To my… Continue reading Crossing the Autoimmune Abyss – The Open Medicine Institute and Foundation
