“I think the idea of improving patient care for those with autoimmune diseases is incredibly important,” - anonymous patient participant in our “Autoimmunity Voices” survey. Our survey of autoimmune patients’ experiences revealed a common theme: the need to improve patient care. As Your Autoimmunity Connection, we share this same goal. Patient care does not just… Continue reading Spotlight on Psoriasis & Psoriatic Arthritis
As a chronic disease patient, my dream is of a world where it doesn't take an average of three years and five doctors for patients to get a diagnosis for their autoimmune disease. Some 117 million people, or about half of all US adults, are living with one or more chronic health conditions, and many of them… Continue reading Your Autoimmunity Connection Newsletter
1. Finding courage to look for a community at Medx 2014 & 2015 Spurred by experiencing my own vague symptoms and watching autoimmune disease pop up in my network of family and friends, I found my passion and dreamed of reimagining research, diagnosis, and care for all my loved ones suffering from mysterious illnesses. Chasing… Continue reading The 5 Ways I Found My Personal Power: From Stanford MedicineX 2014 to 2017
Written by: Bonnie Feldman, DDS, MBA, Ellen M. Martin, Kelsey O’Donoghue For over a decade I consistently saw a physical therapist to help cope with my chronic pain, but never felt fully satisfied with my results. I thought I was doing everything within my power to alleviate my symptoms, but it was still not enough… Continue reading Is Kundalini Yoga the Movement Therapy You’ve Been Looking For?
Having a chronic disease does not mean that we are powerless in achieving our best states of health. In fact, maximizing our personal well-being may be well within our control! More resources are becoming available to help patients overcome their chronic symptoms. One of these valuable resources is Vida’s personalized coaching platform - an app… Continue reading The Power of Personalized Coaching
As a chronic disease patient, navigating the healthcare system can feel like fending for yourself in an unfamiliar big city - most other people seem to know their way around while you stand by, lost and confused. You are not alone. Some 117 million people, or about half of all US adults, are living with… Continue reading How to Achieve Your Optimal Wellbeing: A Patient Guide
“The only thing permanent about our behavior patterns, is our belief that they are so.” - Dr. Moshe Feldenkrais I have been going to various types of physical therapy weekly for thirty years. This “fearless experimenter” found that despite continually seeking new ways to improve my day-to-day health, I was striking out with my chronic… Continue reading The Feldenkrais Method: Finding Your Personal Power to Reduce Chronic Pain
In this day and age of social connectivity and communication, ideas and movements have the potential to spread like wildfire. You could say that possibly anything could go viral, even a diet. Traditionally, diets are not something you would expect to go viral, but with the tidal wave of health conscious consumers, fad diets have become… Continue reading Ancient Eating Gone Wild: Paleo, Fact or Fiction?
Turning Autoimmune Dreams into Reality Being a Big Vision entrepreneur is a ride on an emotional rollercoaster. My vision is of a connected world of personalized care for autoimmune patients that uses data and digital tools to reshape research, diagnosis and clinical practice for autoimmune disease. This, of course, is outside today’s mainstream thinking, which… Continue reading Ahead of My Time or Out of My Mind?
Do you know there is an invisible epidemic affecting millions, possibly billions worldwide? The worst part is that number is increasing and it’s increasing in children. Early this year, we began a series on autoimmune disease that illustrates its underserved and invisible nature. This invisible disease presents a large and growing opportunity to help millions today… Continue reading Once the Fog Lifts…