food matters, Spotlights on Autoimmune Diseases, Uncategorized

Food Spotlight on Lupus

Written by: Bonnie Feldman, DDS, MBA, Becca Malizia, BS, Ellen M. Martin As our knowledge about nutrition and food as medicine expands, using foods as health enhancers and therapy agents has become increasingly popular. Many patients, including autoimmune, are following dietary guidelines to help mitigate symptoms, based on the growing understanding that diet and nutrition can… Continue reading Food Spotlight on Lupus

autoimmune research, microbiome, oral health, Uncategorized

The Oral Origins of Autoimmune Diseases

Written by: Hailey Motooka, Bonnie Feldman, DDS, MBA, Ellen M. Martin Crohn’s, Lupus, and Celiac mean different things to different people. To some, they are completely foreign words that could pass as Pokemon names. To others, they are words occasionally mentioned in commercials about some medication with a million different side effects. But to the… Continue reading The Oral Origins of Autoimmune Diseases

Spotlights on Autoimmune Diseases, Uncategorized

Spotlight on Lupus

"After decades of my symptoms being dismissed by multiple doctors, I found power in educating myself and advocating for my own needs. We need to make quality, patient-centered care more readily available; patients should never feel alone in their fight for wellbeing." - Anonymous patient participant in our Autoimmunity Voices survey. Obtaining appropriate diagnosis, effective… Continue reading Spotlight on Lupus

autoimmune research, lifestyle, microbiome, Uncategorized

Trust Your Gut – the Microbiome & Autoimmunity

DrBonnie360 returns to Cambridge HealthTech Institute’s 2nd Annual Targeting the Microbiome Conference in Boston, MA on September 20. Highlighting the influence of the microbiome on autoimmune disease, DrBonnie360 will be presenting the latest in how the microbiome affects IBD, Celiac, MS, RA, and Lupus, as well as pioneering companies working in this sphere. Here is… Continue reading Trust Your Gut – the Microbiome & Autoimmunity

autoimmune research, patient stories, Uncategorized

Autoimmunity Voices

About Us: Although digital health commands $4B in funding, autoimmune diseases have remained wallflowers at the party. So, how do we make this lonely world of autoimmune disease not so lonely? Currently, there is a huge unmet need in autoimmune disease. These not-obvious - under the surface - invisible - diseases cause 50 million patients… Continue reading Autoimmunity Voices

autoimmune research, food matters, lifestyle, microbiome, Uncategorized

Personalized Nutrition to Modify Autoimmune Symptoms

By Bonnie Feldman, Tiffany Simms and Ellen M Martin Through our surveys of autoimmune patients and our Stanford Medicine X workshop, we found many autoimmune patients feeling ill-used and underserved by conventional medical care. Many other blogs and web sites also spotlight these issues across the autoimmune community. Widespread are feelings that no one was… Continue reading Personalized Nutrition to Modify Autoimmune Symptoms

patient stories, Uncategorized

Believe It or Not

By Tiffany Simms, Bonnie Feldman, and Ellen M Martin Why are the lonely voices of autoimmune disease so lonely? What compelled us to coin this name? Autoimmune disease is underserved, overlooked, and under-appreciated. Due to the invisible nature of autoimmune diseases, many of its patients look normal and healthy. This presents a challenge for patients’… Continue reading Believe It or Not

autoimmune research, digital health

Crossing the Autoimmune Abyss – The Open Medicine Institute and Foundation

By Bonnie Feldman, Ellen M. Martin Sometimes I find the answers I am looking for in the most unlikely places! Listening to the Lonely Voices of Autoimmune Disease led me on a hunt to find emerging companies using data and digital tools to help the large and growing needs of the autoimmunity community. To my… Continue reading Crossing the Autoimmune Abyss – The Open Medicine Institute and Foundation

autoimmune research, digital health, Uncategorized

Becoming Visible

By Tiffany Simms and Bonnie Feldman “My doctors really didn’t have an answer” “The entire time my family doctor had no answer as to what was wrong with me” “No one in 7 years had ever thought to test me for an autoimmune disease” “The hospital staff thought I was faking it” “‘It’s different for… Continue reading Becoming Visible

patient stories, Uncategorized

Half Full

Following Sara’s story, Surprise Surprise, we delve into Sara’s 7 year challenge to getting an official diagnosis. “My official diagnosis’ were derived in the Fall of 2014. It was after my 10 year old niece said that I had a bald spot behind my right ear. Because of the location of it, I had no… Continue reading Half Full