Lupus Archives

A Patient Journey Solution (Part 3): Digitally Enabled V1C
A solution to convoluted autoimmune patient journeys?

Digitally enabled, virtual first care (V1C) offers a potential solution to convoluted autoimmune patient journeys. V1C especially offers significant advantages for autoimmune and inflammatory disease (AIID) patients in accessing specialized care. Virtual specialist practices get patients to a rheumatologist or gastroenterologist much faster (days rather than months) and with less

The Autoimmune Patient Journey (Part 2)
A Deeper Dive into the Loops

Many Convoluted Stages Along AIID Patient Journeys The convoluted journey of patients with autoimmune and inflammatory diseases (AIIDs) has many stages. Each stage presents challenges that may cause patients to drop out before they get the care they need. Unlike cancer, diabetes, and heart disease, there are no population screening

The Total Cost Burden of the Autoimmune Epidemic

The Problem: We Don’t Really Know! The problem with estimating the total cost burden of the autoimmune disease (AIID) epidemic is that we really don’t know! A May 2022 NIH report validates our long-held belief that missing and inconsistent data for autoimmune diseases (AIIDs) are at the root of the

The NIH Report on Autoimmune Disease, Part 2: Enhancing Research

NIH Report Shows Why The AIID Epidemic is Invisible An NIH research report on autoimmune disease, published May, 2022, explains why, despite affecting more Americans than cancer, autoimmune and immunoinflammatory diseases (AIIDs) remain an invisible epidemic. Autoimmunity is an orphaned research field of patchwork studies of some 80-150 individual diseases.

Systemic lupus erythematosus (SLE) aka Lupus

This month, we shine our spotlight on lupus (systemic lupus erythematosus, or SLE). Read on to become connected with available statistics, research initiatives, supportive patient communities, and still more resources. And check out our Facebook page and forum for more autoimmune-related updates! “After decades of my symptoms being dismissed by

Autoimmunity Voices

About Us: Although digital health commands $4B in funding, autoimmune diseases have remained wallflowers at the party. So, how do we make this lonely world of autoimmune disease not so lonely? Currently, there is a huge unmet need in autoimmune disease. These not-obvious – under the surface – invisible –

Lupus

A Patient Journey Solution (Part 3): Digitally Enabled V1C A solution to convoluted autoimmune patient journeys?

The Autoimmune Patient Journey (Part 2) A Deeper Dive into the Loops