Spotlight on Multiple Sclerosis

“The first neurologist I went to see about my MS brushed off my questions and concerns about medications and made me feel helpless, as if no matter what lifestyle changes I made, MS would cripple me…” - anonymous patient participant…

The Power of Story and Listening at the 8th Annual Body Computing Conference

What can healthcare learn from Hollywood? Do you feel inspired by a good story? We all do, “because our brains are hard wired for stories,” explains Ed Saxon at the 8th Annual Body Computing Conference. “Stories are how we learn about…

Patient Communities: Filling an Unmet Need

As a continuation of “Getting Healthy is a Team Sport,” we will now look at what patients do online and what purpose patient communities serve. Why do patients go online? A 2004 survey shows how patients dissatisfied with traditional medical…

Getting Healthy is a Team Sport

The Power of Social Networks Do you think your health is determined by the individual alone or are there other important factors as well? Humans are social animals, and our health – like so much else – is strongly influenced…

Smart Patients: Harnessing the Exponential Power of Patient Microexperts

Roni Zeiger MD is a physician who thinks that doctors have a lot to learn from their patients.  As the former Chief Health Strategist at Google, Roni spent a great deal of time thinking about how people search for medical…

HealClick: Patients Sharing with a Purpose

Trying to cope with the symptoms of chronic disease can be like sailing uncharted waters.  Joey Tuan experienced this firsthand; an active young man just embarking on a promising career as a consultant, Tuan was struck down by a debilitating…

T1D Exchange: Helping Patients and Researchers Collaborate Toward a Cure

Type 1 diabetes is a significant global problem, with 35 million people affected worldwide.  In the United States, there are 2 million T1D patients, accounting for $14 billion in healthcare costs and lost income. Despite decades of research, there are…