patient stories, Uncategorized

Being “Old” at 13

I was constantly labeled the ‘hard’ or ‘interesting’ case and seemed to stump every doctor I visited. [5th grade through high school] My story: [Fast forward to post college] I held an IT consulting job that kept me on my toes 24/7/365. My pain came back in the form of hip pain that traveled down… Continue reading Being “Old” at 13

patient stories, Uncategorized

It’s Not Contagious!

Following Will, our second UCLA student, Tia, lends us her voice in describing the challenges of living with and caring for psoriasis. –Did you know about Psoriasis before you had it?– I had no idea what psoriasis was! The first time I ever showed symptoms I just had one small spot, and my doctor thought… Continue reading It’s Not Contagious!

digital health, lifestyle, patient stories, Uncategorized

Tinkering, Tracking, & Tweaking

Following Lilly’s Journey in discovering her autoimmune disease and struggling through diagnosis, she lends us her voice in experimental lifestyle modification and what could most help herself and the autoimmune community. –Have you seen both traditional medicine practitioners and/or integrative alternative medicine practitioners?– I have been to both traditional medicine practitioners as well as integrative/alternative… Continue reading Tinkering, Tracking, & Tweaking

patient stories, Uncategorized

How Do You See The Invisible?

  Like heart disease, diabetes, and many other chronic diseases,  autoimmune disease is an invisible disease. –Any memorable moments while being tested?– “The most memorable and frustrating time for me was before I was diagnosed with Crohn’s Disease. I was in and out of the ER three times in one weekend because the doctors kept… Continue reading How Do You See The Invisible?

patient stories, Uncategorized

Real or Not Real

[Summer of 2011] One morning I woke up and was paralyzed by aching throughout my entire body. Any move I made caused excruciating pain in my joints. I could not even turn over in my bed without feeling agonizing discomfort. I became completely reliant on my mother to do everything for me. I gained twenty… Continue reading Real or Not Real

patient stories, Uncategorized

Half Full

Following Sara’s story, Surprise Surprise, we delve into Sara’s 7 year challenge to getting an official diagnosis. “My official diagnosis’ were derived in the Fall of 2014. It was after my 10 year old niece said that I had a bald spot behind my right ear. Because of the location of it, I had no… Continue reading Half Full

patient stories, Uncategorized

Surprise, Surprise

“Out of the blue, I woke up one day and my eyes were literally stuck shut. Once I was able to get them open, I was terrified by what I saw in the mirror…red, swollen, very sore looking eyes. I immediately went to see an eye doctor, who prescribed me eye drops and sent me… Continue reading Surprise, Surprise

patient stories, Uncategorized

The World Isn’t an Easy Place

– “How has your life changed after diagnosis?” – “Before diagnosis, I was a very active person.  Immediately after diagnosis, my life changed drastically.  My activity level decreased to the point I was basically housebound and on many days, I was bed bound. In the eighteen years that have passed, I have been able to… Continue reading The World Isn’t an Easy Place

patient stories, Uncategorized

Why Me?

When I was first diagnosed with multiple autoimmune diseases, my first thought was, “What am I going to do?”  My doctors really didn’t have an answer.  Next, I thought, “Why me?”  Again, there were no true answers.  My thinking stayed in the “Why me?” stage for many years along with anger and depression. Slowly, I… Continue reading Why Me?