Spotlights on Autoimmune Diseases, Uncategorized

Spotlight on Psoriasis & Psoriatic Arthritis

“I think the idea of improving patient care for those with autoimmune diseases is incredibly important,” - anonymous patient participant in our “Autoimmunity Voices” survey. Our survey of autoimmune patients’ experiences revealed a common theme: the need to improve patient care. As Your Autoimmunity Connection, we share this same goal. Patient care does not just… Continue reading Spotlight on Psoriasis & Psoriatic Arthritis

patient stories, Uncategorized

Being “Old” at 13

I was constantly labeled the ‘hard’ or ‘interesting’ case and seemed to stump every doctor I visited. [5th grade through high school] My story: [Fast forward to post college] I held an IT consulting job that kept me on my toes 24/7/365. My pain came back in the form of hip pain that traveled down… Continue reading Being “Old” at 13

autoimmune research, patient stories, Uncategorized

Autoimmunity Voices

About Us: Although digital health commands $4B in funding, autoimmune diseases have remained wallflowers at the party. So, how do we make this lonely world of autoimmune disease not so lonely? Currently, there is a huge unmet need in autoimmune disease. These not-obvious - under the surface - invisible - diseases cause 50 million patients… Continue reading Autoimmunity Voices

autoimmune research, patient stories, Uncategorized

Tinkering and Tweaking with Self Care

By Tiffany Simms, Bonnie Feldman, and Ellen M Martin While we wait for traditional medicine to catch up to our needs, will integrative practices be the way to go? Following Lilly, Julie, from It’s Just a Bad Day, further emphasizes how diet and lifestyle modifications have significantly improved her autoimmunity.   Having done so much research on… Continue reading Tinkering and Tweaking with Self Care

autoimmune research, digital health, Uncategorized

Becoming Visible

By Tiffany Simms and Bonnie Feldman “My doctors really didn’t have an answer” “The entire time my family doctor had no answer as to what was wrong with me” “No one in 7 years had ever thought to test me for an autoimmune disease” “The hospital staff thought I was faking it” “‘It’s different for… Continue reading Becoming Visible

patient stories, Uncategorized

Real or Not Real

[Summer of 2011] One morning I woke up and was paralyzed by aching throughout my entire body. Any move I made caused excruciating pain in my joints. I could not even turn over in my bed without feeling agonizing discomfort. I became completely reliant on my mother to do everything for me. I gained twenty… Continue reading Real or Not Real