Written by: Bonnie Feldman, DDS, MBA, Anna Simon, Ellen M. Martin Obtaining appropriate diagnosis, effective treatment, and quality care for autoimmune and chronic conditions is often quite challenging. If you have experienced such struggles, then you are not alone. Statistics show that over 50 million adults in the US suffer from
This month, we shine our spotlight on lupus (systemic lupus erythematosus, or SLE). Read on to become connected with available statistics, research initiatives, supportive patient communities, and still more resources. And check out our Facebook page and forum for more autoimmune-related updates! “After decades of my symptoms being dismissed by
A spotlight on Crohn’s disease, one of two inflammatory bowel diseases (IBD), autoimmune conditions in which a dysregulated immune system damages the intestinal wall. Crohn’s disease affects 201:100,000 Americans, but most people aren’t aware of the disease.
This month, we shine our spotlight on Rheumatoid Arthritis (RA). RA is one of the most common autoimmune diseases, with an estimated 1.5 million people diagnosed in the United States. With such significant prevalence, it is highly possible that you or someone you know may be affected by RA, and
“The first neurologist I went to see about my MS brushed off my questions and concerns about medications and made me feel helpless, as if no matter what lifestyle changes I made, MS would cripple me…” – anonymous patient participant in our “Autoimmunity Voices” survey Patient stories such as this
Written by: Bonnie Feldman, DDS, MBA, Ellen M. Martin, Kelsey O’Donoghue Imagine attending a workout class in which you warm up with stretching…seems pretty normal, right? Now imagine continuing to stretch for the whole class. Studios selling this concept are popping up around the nation – classes composed entirely of
1. Finding courage to look for a community at Medx 2014 & 2015 Spurred by experiencing my own vague symptoms and watching autoimmune disease pop up in my network of family and friends, I found my passion and dreamed of reimagining research, diagnosis, and care for all my loved ones
By Bonnie Feldman, Ellen M Martin, and Tiffany Simms What Do We Mean by the Autoimmune Abyss? More than 50M patients in the US are living with 100+ different kinds of autoimmune diseases. In “The Lonely Voices of Autoimmune Disease” young adults talk about the challenges of living with chronic
Turning Autoimmune Dreams into Reality Being a Big Vision entrepreneur is a ride on an emotional rollercoaster. My vision is of a connected world of personalized care for autoimmune patients, using data and digital tools to reshape research, diagnosis, and clinical practice for autoimmune disease. This is outside today’s mainstream
About Us: Although digital health commands $4B in funding, autoimmune diseases have remained wallflowers at the party. So, how do we make this lonely world of autoimmune disease not so lonely? Currently, there is a huge unmet need in autoimmune disease. These not-obvious – under the surface – invisible –