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Long and Frustrating Autoimmune Patient Journeys (Part 1)
Slow & Uncoordinated Path to Diagnosis & Treatment Today, autoimmune patient journeys are typically long, convoluted, and frustrating; from first awareness of symptoms to scheduling medical visits, diagnosis, treatment, and long-term care. Since many autoimmune & inflammatory diseases (AIIDs) emerge in youth or middle age and last a lifetime, the
Specialty Pharmaceuticals: The Highest Autoimmune Cost
Invisible Epidemic of Autoimmune Disease As we continue to illuminate the hidden costs of the long-ignored epidemic of autoimmune disease (AIID), we must shine a light on the highest autoimmune cost: Specialty pharmaceuticals. Current data largely underestimate total AIID costs, and accurate numbers are few and far between. Through our
The Total Cost Burden of the Autoimmune Epidemic
The Problem: We Don’t Really Know! The problem with estimating the total cost burden of the autoimmune disease (AIID) epidemic is that we really don’t know! A May 2022 NIH report validates our long-held belief that missing and inconsistent data for autoimmune diseases (AIIDs) are at the root of the
Five Medical Philosophies: What Are They?
We have noticed much confusion among our broad digital health/virtual-first care network about the definitions of conventional, lifestyle, functional and alternative medicine. To add to the confusion, each picks and chooses techniques from the others to incorporate into their approach. For more than a decade, our team has focused on
The NIH Report on Autoimmune Disease, Part 2: Enhancing Research
NIH Report Shows Why The AIID Epidemic is Invisible An NIH research report on autoimmune disease, published May, 2022, explains why, despite affecting more Americans than cancer, autoimmune and immunoinflammatory diseases (AIIDs) remain an invisible epidemic. Autoimmunity is an orphaned research field of patchwork studies of some 80-150 individual diseases.
The NIH on Autoimmune Disease: An Invisible Epidemic
A May 2022 NIH Report on autoimmune research makes clear why the AIID epidemic remains invisible & silent.
Some incidence, prevalence & growth estimates for selected autoimmune diseases (AIIDs)
We’ve compiled some incidence, prevalence and growth estimates for selected autoimmune diseases (AIIDs) as a follow up to our previous post. In that post, we surveyed the sorry state of US national autoimmune incidence & prevalence data. Summary: Per the May 2022 NIH Report: Enhancing Autoimmune Research the US has
Autoimmune Incidence & Prevalence: Why don’t we have good data on AIIDs?
Since 2010, we have sought autoimmune disease (AIID) incidence and prevalence data. Despite efforts by independent organizations like AARDA/AA, AIR and many single disease groups, we never found total national autoimmune statistics. NIH/CDC statistics bury AIIDs within siloed categories: Arthritis, diabetes, or by medical specialty: rheumatology, neurology, dermatology, endocrine, etc.
Stanford MedX Autoimmune 2014-17 Presentations by DrBonnie360
We are here republishing our 2014-17 Stanford MedX autoimmune presentations, plus unpublished material from our 2015 Autoimmune Workshop. As we develop our 2023 State of Autoimmunity Report, we’ve been revisiting our previous analyses. For another example, see our 2016-19 patient-centered vision and business opportunities post. In 2015, Bonnie conducted an
Our pre-Covid vision of autoimmune business opportunities
Back in 2019, pre-Covid pandemic, we already saw attractive investment & business opportunities to meet the large and growing need in autoimmune and chronic immuno-inflammatory diseases. Despite being as prevalent as cancer and growing faster, these diseases remain invisible: under-recognized, under-researched and under-served. In particular, multiple medical specialty silos within
Can Air Purifiers Fight COVID or Wildfire Smoke?
Two types of purifiers: filters and sanitizers There are two types of air purifiers—filters and sanitizers—though some combine both in one product (1). Filters, most effectively, high-efficiency particulate-arresting (HEPA) filters, remove physical particles like dust, pollen, and smoke from the air. This can help alleviate symptoms for people with allergies or
Post-Viral Syndromes – A History of Neglect (Long COVID Part 2)
The emergence of post-Covid syndrome shines new light on post-viral syndromes
The emergence of post-COVID syndrome shines new light on the old problem of post-viral syndromes In Part 1, we discussed how the rise of long covid shines new light on chronic post-viral disorders long ignored by researchers and clinicians. But this issue didn’t just appear with the SARS-COV-2 COVID-19 pandemic.