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Will Long COVID Change the Game for Autoimmune Diseases, too? Part 1
Will long-COVID activists, especially practitioner-patients, finally force healthcare systems, clinicians and medical researchers to confront post-viral and similar chronic syndromes they have shrugged off for decades? In keeping with our mission, will a focused response by healthcare systems and researchers to post-COVID syndrome help illuminate the invisible epidemic of autoimmune and autoinflammatory disorders?
Halloween with an Autoimmune Disease
Halloween is a hard holiday for a restrictive autoimmune diet, but these restrictions shouldn’t have to get in the way of participating in holiday festivities. Here are a few of out favorite autoimmune-friendly Halloween treats to get you and your kids in the Halloween spirit!
The State of Autoimmunity 2016 — A Progress Report: Part 2 (re-posted from Tincture)
In Part 2 of The State of Autoimmunity 2016, we will examine how established and emerging companies are utilizing advances in technology. More importantly, we describe how these companies and chronic disease management platforms can help create individualized autoimmune care. In Part 1, we discussed autoimmune disease as an untapped
Digital Health & Chronic Disease Care Post COVID (Part 2)
The COVID-19 pandemic and healthcare systems’ responses to it have been the biggest disruptors in digital health’s 30-year history. We hope this will be the biggest disruptor for a few decades to come! Therefore, this is a unique moment of opportunity for digital health. Especially for digital and virtual-first chronic
Digital Health & Chronic Disease Care Post-COVID (Part 1)
The COVID-19 pandemic and response is transforming healthcare in many ways, with unpredictable consequences. In fact, the pandemic and healthcare systems’ responses to it are the biggest disruptors in 30 years of digital health. Hopefully, this will be the biggest disruptor for a few decades to come! We see the
The State of Autoimmunity 2016 — A Progress Report: Part 1 (re-posted from Tincture)
Applying Technology to Empower Patients. 2016’s trends gave us glimmers of towards crossing the autoimmune abyss and achieving the vision of individualized autoimmune care. What was the state of autoimmunity in 2016, that unforgettable year full of positive and negative events? One positive development was increasing awareness of the unmet
Where I am Now
I began sharing my story here in 2015, writing from a patient’s perspective. I had just left another specialist’s office, holding lab results that didn’t really point to anything clear. For years, I was sent from internal medicine to orthopedics, rheumatology, and endocrinology. Every specialist was considerate and ruled out
Why the Care Team Model is So Important to Autoimmune Patients
A decade ago, I became the CEO of my own health after growing frustrated with conventional medicine’s fragmented approach. I was bounced from one specialist to another—internal medicine, orthopedics, rheumatology, endocrinology, chronic pain—each insisting, “It’s just stress from working on Wall Street with four kids.” The time, money, and emotional
Unlocking Autoimmune Potential in Women’s Health
In the United States, over 35 million women live with an autoimmune disease1, yet less than 1% of women’s health funding is allocated to these conditions2. The impact is extensive: women often spend years trying to get a diagnosis, face daily symptoms that disrupt work and family life, and have
Why Autoimmune Disease is a Women’s Health Issue
The Disproportionate Burden of Autoimmune Disease in Women Autoimmune disease is a women’s health issue! Autoimmune and autoinflammatory diseases (AIIDs) afflict more than 35 million women in the United States alone1. According to the National Institutes of Health (NIH), 75-80% of autoimmune patients are female. These disparities are most evident
Menopause and Autoimmune Disease: A Complicated Relationship
The intersection of menopause and autoimmune disease represents a crucial yet underexplored aspect of women’s health. With 80% of autoimmune patients being female and millions of women experiencing menopause each year, understanding this connection is vital for improving health outcomes. The hormonal changes during menopause don’t just mark a life
Polyautoimmunity: When Autoimmune Diseases Converge
The world of autoimmune diseases is far more complex than medical professionals once believed. Emerging research reveals a fascinating phenomenon that challenges traditional diagnostic boundaries: polyautoimmunity. This groundbreaking concept suggests that autoimmune diseases are not isolated conditions, but are interconnected and can coexist and interact in profound ways. Defining Polyautoimmunity: