Autoimmune patients are self-isolating since they risk severe COVID-19 disease. Patients tell their stories in the links. MDs specializing in autoimmune share self-help tips for coping during the pandemic.
Tag: patient stories
COVID-19 Autoimmune Patients’ Stories
Voices of Autoimmune Patients
Autoimmune diseases are invisible: they often don't present externally and seemingly slip through the grasp of doctors' diagnoses. These are glimpses of the stories and voices of autoimmune patients from our Stanford MedicineX Workshop Survey that highlight the long and arduous struggles many autoimmune patients face with diagnosis.
The 5 Ways I Found My Personal Power: From Stanford MedicineX 2014 to 2017
1. Finding courage to look for a community at Medx 2014 & 2015 Spurred by experiencing my own vague symptoms and watching autoimmune disease pop up in my network of family and friends, I found my passion and dreamed of…
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Decoding Autoimmunity
By Bonnie Feldman, Ellen M Martin, and Tiffany Simms What Do We Mean by the Autoimmune Abyss? More than 50M patients in the US are living with 100+ different kinds of autoimmune diseases. In “The Lonely Voices of Autoimmune Disease”…
The Feldenkrais Method: Finding Your Personal Power to Reduce Chronic Pain
“The only thing permanent about our behavior patterns, is our belief that they are so.” - Dr. Moshe Feldenkrais I have been going to various types of physical therapy weekly for thirty years. This “fearless experimenter” found that despite continually…
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Tai Chi & Qi Gong as Movement Therapy
Over the past several generations, stress levels and chronic disease levels have continued to rise. According to the American Psychology Association, on average, younger adults are more likely than older generations to report that their stress has increased in the past…
DIY – Cognitive Behavioral Therapy for Sleep – Sleepio
As a teenager, I vividly remember my mother pacing the floors when she was unable to sleep. In fact, there she was, up and about, when I returned home late from a date. I never thought much about this at…
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The Future of Autoimmunity
What’s in store for autoimmunity? How close are we to bridging the autoimmune abyss? What happens now? Take a look at our New Year series recapping and moving forward in autoimmune disease on Tincture - Medium The State of Autoimmunity 2016 -…
The Celiac Disease Foundation: Raising Awareness and Promoting Research
Elaine Monarch suffered from a mysterious illness for most of her adult life. It was only in her 50s that she received an accurate diagnosis: celiac disease (CD). CD is an autoimmune disease that causes damage to the small intestine…
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Smart Patients: Harnessing the Exponential Power of Patient Microexperts
Roni Zeiger MD is a physician who thinks that doctors have a lot to learn from their patients. As the former Chief Health Strategist at Google, Roni spent a great deal of time thinking about how people search for medical…
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