Autoimmune patients are self-isolating since they risk severe COVID-19 disease. Patients tell their stories in the links. MDs specializing in autoimmune share self-help tips for coping during the pandemic.
Autoimmune diseases are invisible: they often don't present externally and seemingly slip through the grasp of doctors' diagnoses. These are glimpses of the stories and voices of autoimmune patients from our Stanford MedicineX Workshop Survey that highlight the long and arduous struggles many autoimmune patients face with diagnosis.
1. Finding courage to look for a community at Medx 2014 & 2015 Spurred by experiencing my own vague symptoms and watching autoimmune disease pop up in my network of family and friends, I found my passion and dreamed of…
Read More The 5 Ways I Found My Personal Power: From Stanford MedicineX 2014 to 2017
By Bonnie Feldman, Ellen M Martin, and Tiffany Simms What Do We Mean by the Autoimmune Abyss? More than 50M patients in the US are living with 100+ different kinds of autoimmune diseases. In “The Lonely Voices of Autoimmune Disease”…
I was constantly labeled the ‘hard’ or ‘interesting’ case and seemed to stump every doctor I visited. [5th grade through high school] My story: [Fast forward to post college] I held an IT consulting job that kept me on my…
Read More Being “Old” at 13: How I Learned to Live With Psoriatic Arthritis
“The only thing permanent about our behavior patterns, is our belief that they are so.” - Dr. Moshe Feldenkrais I have been going to various types of physical therapy weekly for thirty years. This “fearless experimenter” found that despite continually…
Read More The Feldenkrais Method: Finding Your Personal Power to Reduce Chronic Pain
Over the past several generations, stress levels and chronic disease levels have continued to rise. According to the American Psychology Association, On average, younger adults are more likely than older generations to report that their stress has increased in the past…
As a teenager, I vividly remember my mother pacing the floors when she was unable to sleep. In fact, there she was, up and about, when I returned home late from a date. I never thought much about this at…
Read More DIY – Cognitive Behavioral Therapy for Sleep – Sleepio
What’s in store for autoimmunity? How close are we to bridging the autoimmune abyss? What happens now? Take a look at our New Year series recapping and moving forward in autoimmune disease on Tincture - Medium The State of Autoimmunity 2016 -…
From Stanford Medicine X 2015 Listen to the talk here.
