Autoimmune patients are self-isolating since they risk severe COVID-19 disease. Patients tell their stories in the links. MDs specializing in autoimmune share self-help tips for coping during the pandemic.
Autoimmune diseases are invisible: they often don’t present externally and seemingly slip through the grasp of doctors’ diagnoses. These are glimpses of the stories and voices of autoimmune patients from our Stanford MedicineX Workshop Survey that highlight the long and arduous struggles many autoimmune patients face with diagnosis.
1. Finding courage to look for a community at Medx 2014 & 2015 Spurred by experiencing my own vague symptoms and watching autoimmune disease pop up in my network of family and friends, I found my passion and dreamed of reimagining research, diagnosis, and care for all my loved ones
By Bonnie Feldman, Ellen M Martin, and Tiffany Simms What Do We Mean by the Autoimmune Abyss? More than 50M patients in the US are living with 100+ different kinds of autoimmune diseases. In “The Lonely Voices of Autoimmune Disease” young adults talk about the challenges of living with chronic
“The only thing permanent about our behavior patterns, is our belief that they are so.” – Dr. Moshe Feldenkrais I have been going to various types of physical therapy weekly for thirty years. This “fearless experimenter” found that despite continually seeking new ways to improve my day-to-day health, I was
Over the past several generations, stress levels and chronic disease levels have continued to rise. According to the American Psychology Association, on average, younger adults are more likely than older generations to report that their stress has increased in the past year. 47% of all Americans say they are concerned with
As a teenager, I vividly remember my mother pacing the floors when she was unable to sleep. In fact, there she was, up and about, when I returned home late from a date. I never thought much about this at the time, until I reached the point in my own
What’s in store for autoimmunity? How close are we to bridging the autoimmune abyss? What happens now? Take a look at our New Year series recapping and moving forward in autoimmune disease on Tincture – Medium The State of Autoimmunity 2016 – A Progress Report The state of autoimmune disease research and
Elaine Monarch suffered from a mysterious illness for most of her adult life. It was only in her 50s that she received an accurate diagnosis: celiac disease (CD). CD is an autoimmune disease that causes damage to the small intestine when a person eats gluten, a protein found in common
Roni Zeiger MD is a physician who thinks that doctors have a lot to learn from their patients. As the former Chief Health Strategist at Google, Roni spent a great deal of time thinking about how people search for medical information online. He began to notice that “it’s easy to