1. Finding courage to look for a community at Medx 2014 & 2015 Spurred by experiencing my own vague symptoms and watching autoimmune disease pop up in my network of family and friends, I found my passion and dreamed of reimagining research, diagnosis, and care for all my loved ones suffering from mysterious illnesses. Chasing… Continue reading The 5 Ways I Found My Personal Power: From Stanford MedicineX 2014 to 2017
By Bonnie Feldman, Ellen M Martin, and Tiffany Simms What Do We Mean by the Autoimmune Abyss? More than 50M patients in the US are living with 100+ different kinds of autoimmune diseases. In “The Lonely Voices of Autoimmune Disease” young adults talk about the challenges of living with chronic disease in the prime of… Continue reading Decoding Autoimmunity
I was constantly labeled the ‘hard’ or ‘interesting’ case and seemed to stump every doctor I visited. [5th grade through high school] My story: [Fast forward to post college] I held an IT consulting job that kept me on my toes 24/7/365. My pain came back in the form of hip pain that traveled down… Continue reading Being “Old” at 13: How I Learned to Live With Psoriatic Arthritis
“The only thing permanent about our behavior patterns, is our belief that they are so.” - Dr. Moshe Feldenkrais I have been going to various types of physical therapy weekly for thirty years. This “fearless experimenter” found that despite continually seeking new ways to improve my day-to-day health, I was striking out with my chronic… Continue reading The Feldenkrais Method: Finding Your Personal Power to Reduce Chronic Pain
Over the past several generations, stress levels and chronic disease levels have continued to rise. According to the American Psychology Association, On average, younger adults are more likely than older generations to report that their stress has increased in the past year. 47% of all Americans say they are concerned with the amounts of stress in… Continue reading Tai Chi & Qi Gong as Movement Therapy
As a teenager, I vividly remember my mother pacing the floors when she was unable to sleep. In fact, there she was, up and about, when I returned home late from a date. I never thought much about this at the time, until I reached the point in my own life where staying asleep seemed… Continue reading DIY – Cognitive Behavioral Therapy for Sleep – Sleepio
What’s in store for autoimmunity? How close are we to bridging the autoimmune abyss? What happens now? Take a look at our New Year series recapping and moving forward in autoimmune disease on Tincture - Medium The State of Autoimmunity 2016 - A Progress Report The state of autoimmune disease research and care is very much like… Continue reading The Future of Autoimmunity
From Stanford Medicine X 2015 Listen to the talk here.
Following Lilly’s Journey in discovering her autoimmune disease and struggling through diagnosis, she lends us her voice in experimental lifestyle modification and what could most help herself and the autoimmune community. –Have you seen both traditional medicine practitioners and/or integrative alternative medicine practitioners?– I have been to both traditional medicine practitioners as well as integrative/alternative… Continue reading Tinkering, Tracking, & Tweaking
Did you know there is a mouth-body connection? Research has demonstrated a link between periodontal (gum) disease and rheumatoid arthritis, an autoimmune disease. Although oral health and joint pain may seem unrelated, as we learn more about the oral microbiome, they may be closer than we imagined. Mysteries of the Mouth The oral microbiome is… Continue reading Rheumatoid Arthritis Starts in the Mouth?