autoimmune research, digital health, Uncategorized

Your Autoimmunity Connection Newsletter

As a chronic disease patient, my dream is of a world where it doesn't take an average of three years and five doctors for patients to get a diagnosis for their autoimmune disease. Some 117 million people, or about half of all US adults, are living with one or more chronic health conditions, and many of them… Continue reading Your Autoimmunity Connection Newsletter

Biohacking, digital health, lifestyle, mind-body, Uncategorized

DIY – Cognitive Behavioral Therapy for Sleep – Sleepio

As a teenager, I vividly remember my mother pacing the floors when she was unable to sleep. In fact, there she was, up and about, when I returned home late from a date. I never thought much about this at the time, until I reached the point in my own life where staying asleep seemed… Continue reading DIY – Cognitive Behavioral Therapy for Sleep – Sleepio

autoimmune research, lifestyle, Uncategorized

Take Control of Your Own (Auto)Immune System

By: Tiffany Simms, Bonnie Feldman, Ellen M. Martin Autoimmunity is individually, statistically, institutionally invisible. Just reading the stats around autoimmune and chronic diseases could get you down in the dumps. Perhaps the worse part is that millions, probably billions, world-wide face this disease with a health care system that treats symptoms without looking at underlying… Continue reading Take Control of Your Own (Auto)Immune System

autoimmune research, Biohacking, digital health, lifestyle, Uncategorized

Learning your #HacktoHeal at SXSW 2016

Why Should You Take Steps to be Healthy When you Already Feel Healthy? What is the Key to Healing? DrBonnie360, AutoimmuneMom, We Are Curious Inc., JIYO, and HopeLab come together to bring SXSW the secrets for your HacktoHeal [View the story “#HacktoHeal at #SXSW ” on Storify]

Biohacking, digital health, lifestyle, patient stories, Uncategorized

DIY Fatigue Buster

Born with a sunny disposition and high energy, I found myself appreciating the concept of allocating my limited energy when a common virus, the chicken pox, attacked my fragile immune system. With my balance out of whack and the stories of many Spoonies on my mind, I began to wonder, “Why is it so hard to… Continue reading DIY Fatigue Buster

digital health, lifestyle, patient stories, Uncategorized

Tinkering, Tracking, & Tweaking

Following Lilly’s Journey in discovering her autoimmune disease and struggling through diagnosis, she lends us her voice in experimental lifestyle modification and what could most help herself and the autoimmune community. –Have you seen both traditional medicine practitioners and/or integrative alternative medicine practitioners?– I have been to both traditional medicine practitioners as well as integrative/alternative… Continue reading Tinkering, Tracking, & Tweaking