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Will Long COVID Change the Game for Autoimmune Diseases, too? Part 1
Will long-COVID activists, especially practitioner-patients, finally force healthcare systems, clinicians and medical researchers to confront post-viral and similar chronic syndromes they have shrugged off for decades? In keeping with our mission, will a focused response by healthcare systems and researchers to post-COVID syndrome help illuminate the invisible epidemic of autoimmune and autoinflammatory disorders?
Halloween with an Autoimmune Disease
Halloween is a hard holiday for a restrictive autoimmune diet, but these restrictions shouldn’t have to get in the way of participating in holiday festivities. Here are a few of out favorite autoimmune-friendly Halloween treats to get you and your kids in the Halloween spirit!
The State of Autoimmunity 2016 — A Progress Report: Part 2 (re-posted from Tincture)
In Part 2 of The State of Autoimmunity 2016, we will examine how established and emerging companies are utilizing advances in technology. More importantly, we describe how these companies and chronic disease management platforms can help create individualized autoimmune care. In Part 1, we discussed autoimmune disease as an untapped
Digital Health & Chronic Disease Care Post COVID (Part 2)
The COVID-19 pandemic and healthcare systems’ responses to it have been the biggest disruptors in digital health’s 30-year history. We hope this will be the biggest disruptor for a few decades to come! Therefore, this is a unique moment of opportunity for digital health. Especially for digital and virtual-first chronic
Digital Health & Chronic Disease Care Post-COVID (Part 1)
The COVID-19 pandemic and response is transforming healthcare in many ways, with unpredictable consequences. In fact, the pandemic and healthcare systems’ responses to it are the biggest disruptors in 30 years of digital health. Hopefully, this will be the biggest disruptor for a few decades to come! We see the
The State of Autoimmunity 2016 — A Progress Report: Part 1 (re-posted from Tincture)
Applying Technology to Empower Patients. 2016’s trends gave us glimmers of towards crossing the autoimmune abyss and achieving the vision of individualized autoimmune care. What was the state of autoimmunity in 2016, that unforgettable year full of positive and negative events? One positive development was increasing awareness of the unmet
Autoimmune Disease Investment is a Women’s Health Investment
As women’s health investment continues to bloom, autoimmune and inflammatory diseases (AIIDs) are an under-recognized opportunity. Despite an astonishing 75-80% of autoimmune patients being female, AIIDs are rarely included under the wide umbrella of women’s health. Even big healthcare systems have largely ignored AIIDs, especially in women. AIIDs remain a
The Emerging Patient Voice in Rheumatology
Having dedicated decades to autoimmune patient advocacy, I have witnessed the remarkable emergence of patient voices in rheumatology, supported by the tools of the digital world, most directly by novel communication modes such as social media that support online communities. Thus, my virtual-first, digital rheumatology clinic rheumission was built on
Autoimmune Advocacy: Patient Influencers (Part I)
With the explosion of social media in today’s technological landscape, patient voices are increasingly relevant in rheumatology. Across platforms, countless patients have stepped up as leaders and influencers, using their platforms to share stories and empower others. As a patient and patient advocate myself, I’m extremely appreciative of the work
Autoimmune Advocacy: Health Innovation Leaders (Part II)
In my mission to connect with autoimmune advocates, I have also collaborated with forerunners of patient advocacy and healthcare innovation. Advocacy spans beyond social media, and delves into the sectors of digital health, consulting, and innovation. In this second part, we’ll dive deeper into the dynamic world of advocacy, where
Mission Critical: Patient-First Strategy for Digital Health
Why is a patient-first strategy mission-critical for digital health companies? My passion for strategic patient-first care is built on decades of living with autoimmune disease and advocacy for the invisible autoimmune epidemic. Despite affecting as many people, autoimmune is 50 years behind cancer: under-recognized, under-researched, and with mostly underserved patients.
Our Vision of Autoimmune Care
Autoimmune Patient Journey The convoluted journey of patients with autoimmune and inflammatory diseases (AIIDs) has many stages. Unlike cancer, diabetes, and heart disease, there are no population screening nor public health education programs for AIIDs. This blocks the path to early diagnosis and preventative autoimmune care. As early symptoms fluctuate