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Will Long COVID Change the Game for Autoimmune Diseases, too? Part 1

Will long-COVID activists, especially practitioner-patients, finally force healthcare systems, clinicians and medical researchers to confront post-viral and similar chronic syndromes they have shrugged off for decades? In keeping with our mission, will a focused response by healthcare systems and researchers to post-COVID syndrome help illuminate the invisible epidemic of autoimmune and autoinflammatory disorders?

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autoimmune

Halloween with an Autoimmune Disease

Halloween is a hard holiday for a restrictive autoimmune diet, but these restrictions shouldn’t have to get in the way of participating in holiday festivities. Here are a few of out favorite autoimmune-friendly Halloween treats to get you and your kids in the Halloween spirit!

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autoimmune

Digital Health & Chronic Disease Care Post COVID (Part 2)

The COVID-19 pandemic and healthcare systems’ responses to it have been the biggest disruptors in digital health’s 30-year history. We hope this will be the biggest disruptor for a few decades to come! Therefore, this is a unique moment of opportunity for digital health. Especially for digital and virtual-first chronic

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autoimmune

Digital Health & Chronic Disease Care Post-COVID (Part 1)

The COVID-19 pandemic and response is transforming healthcare in many ways, with unpredictable consequences. In fact, the pandemic and healthcare systems’ responses to it are the biggest disruptors in 30 years of digital health. Hopefully, this will be the biggest disruptor for a few decades to come! We see the

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The NIH Report: “Enhancing NIH Research on Autoimmune Disease”

May 2022 Report This May 2022 549-page NIH report represents a significant breakthrough in autoimmune research focus. Its recommendations have major downstream implications for CDC statistics, basic research, R&D, medical education & clinical guidelines. Funded and launched in 2019, before the pandemic but even more relevant since COVID-19 spotlighted post-viral

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Siloed Specialties & Treatments for Autoimmune Diseases

Autoimmune Diseases are Siloed by Specialty Click the arrows next to the slide to view the sources. Looks a mess, doesn’t it? It is! Autoimmune diseases are scattered across many different medical specialties, creating a siloed landscape in which patients must coordinate and navigate for themselves. This illustration maps high-prevalence

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The Chronic Disease Epidemic: Visible & Invisible

The Visible Chronic Disease Epidemic Click the arrows next to the slide to view the sources. The chronic disease population has grown substantially in recent years since modern medicine has extended the human lifespan. Depending on sources, 40-60% of Americans (128-140M people) have one or more chronic health conditions. Moreover,

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A Patient Journey Solution (Part 3): Digitally Enabled V1C
A solution to convoluted autoimmune patient journeys?

Digitally enabled, virtual first care (V1C) offers a potential solution to convoluted autoimmune patient journeys. V1C especially offers significant advantages for autoimmune and inflammatory disease (AIID) patients in accessing specialized care. Virtual specialist practices get patients to a rheumatologist or gastroenterologist much faster (days rather than months) and with less

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The Autoimmune Patient Journey (Part 2)
A Deeper Dive into the Loops

Many Convoluted Stages Along AIID Patient Journeys The convoluted journey of patients with autoimmune and inflammatory diseases (AIIDs) has many stages. Each stage presents challenges that may cause patients to drop out before they get the care they need. Unlike cancer, diabetes, and heart disease, there are no population screening

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