This month, we shine our spotlight on mixed connective tissue disease (MCTD), an autoimmune disorder that is considered an overlap disease, meaning it is a combination of other disorders.
"My daughter was diagnosed with ulcerative colitis at age 5, now 6. I am a physiotherapist working in MSK, occasionally treating RA. In my previous 'life' i was a biochemist. My daughter's diagnosis and subsequent reading made me re-think my view of health and disease. I have been mostly disappointed with her treatment." A patient… Continue reading Spotlight on Ulcerative Colitis
Obtaining appropriate diagnosis, effective treatment, and quality care for autoimmune and chronic conditions is often quite challenging. If you have experienced such struggles, then you are not alone. Statistics show that over 50 million adults in the US suffer from autoimmune diseases… so why does it remain so difficult to find the right resources and… Continue reading Spotlight on Scleroderma
"After decades of my symptoms being dismissed by multiple doctors, I found power in educating myself and advocating for my own needs. We need to make quality, patient-centered care more readily available; patients should never feel alone in their fight for wellbeing." - Anonymous patient participant in our Autoimmunity Voices survey. Obtaining appropriate diagnosis, effective… Continue reading Spotlight on Lupus
“I think the idea of improving patient care for those with autoimmune diseases is incredibly important,” - anonymous patient participant in our “Autoimmunity Voices” survey. Our survey of autoimmune patients’ experiences revealed a common theme: the need to improve patient care. As Your Autoimmunity Connection, we share this same goal. Patient care does not just… Continue reading Spotlight on Psoriasis & Psoriatic Arthritis
“I have been struggling with psoriasis for 36 years, and my daughter was recently diagnosed with Crohn’s. I would love to see cures for both in my lifetime”. A patient shared this quote with us back in 2015, when we surveyed autoimmune patients at Stanford Medicine X and shared some of their stories to help raise… Continue reading Spotlight on Crohn’s Disease
“It took 10 years to diagnose my RA. I had repeated episodes of joint swelling and terrible pain. It wasn't until a colleague suggested RA as a possibility for a particularly painful flare in my knee that I specifically asked a practitioner at urgent care about it and she ran some blood work” - anonymous… Continue reading Spotlight on Rheumatoid Arthritis
“The first neurologist I went to see about my MS brushed off my questions and concerns about medications and made me feel helpless, as if no matter what lifestyle changes I made, MS would cripple me…” - anonymous patient participant in our “Autoimmunity Voices” survey Patient stories such as this are all too common. Given… Continue reading Spotlight on Multiple Sclerosis