Your (Auto)Immunity Connection
Written by: Bonnie Feldman, DDS, MBA, and Hailey Motooka As the new year of 2019 begins, I find myself, like many other people, striving to stick to resolutions such as exercise and more importantly, organization. I decided to address my New Year goals by starting ambitiously and organizing my personal health record. The image below… Continue reading The Excitement of Being an Early Adaptor for Seqster
Written by: Bonnie Feldman, DDS, MBA, and Hailey Motooka We all know that a “picture is worth a thousand words,” but why haven’t we applied this approach to helping us tell our health stories? At last, Katie McCurdy, the founder and creator of Pictal Health, has used her design skills to create an easy to… Continue reading A Picture of My Health Journey- Pictal Health
Written by Bonnie Feldman, DDS, MBA, Ellen M. Martin, and Hailey Motooka Do you have a passion project that sometimes drives you to do unexpected things? For many years I have been dreaming of improving research, diagnosis and care for autoimmunity by bringing the best of conventional, integrative and digital medicine to autoimmune patients. And… Continue reading The Allegheny Health Network Autoimmunity Institute — How my Crazy Adventure Found New Optimism
The importance of patients participating in clinical trials can not be underestimated. Just ask Alicia Staley, the Vice President of patient affairs at Science 37, who believes, “It is our obligation as patients, at the end of a treatment journey, to turn around and hold the hands of others.” At Your Autoimmunity Connection we have… Continue reading Science 37- Accelerating Biomedical Research by Putting Patients First
Having a chronic disease does not mean that we are powerless in achieving our best states of health. In fact, maximizing our personal well-being may be well within our control! More resources are becoming available to help patients overcome their chronic symptoms. One of these valuable resources is Vida’s personalized coaching platform - an app… Continue reading The Power of Personalized Coaching
As a chronic disease patient, navigating the healthcare system can feel like fending for yourself in an unfamiliar big city - most other people seem to know their way around while you stand by, lost and confused. You are not alone. Some 117 million people, or about half of all US adults, are living with… Continue reading How to be the CEO of Your Own Health: A Patient Guide
By Bonnie Feldman, Ellen M Martin, and Tiffany Simms What Do We Mean by the Autoimmune Abyss? More than 50M patients in the US are living with 100+ different kinds of autoimmune diseases. In “The Lonely Voices of Autoimmune Disease” young adults talk about the challenges of living with chronic disease in the prime of… Continue reading Decoding Autoimmunity
As a teenager, I vividly remember my mother pacing the floors when she was unable to sleep. In fact, there she was, up and about, when I returned home late from a date. I never thought much about this at the time, until I reached the point in my own life where staying asleep seemed… Continue reading DIY – Cognitive Behavioral Therapy for Sleep – Sleepio
Personal genomic testing may have the potential to help each of us maximize our wellbeing by finding the right foods and supplements, as well as helping us to find our optimal approach to alignment and exercise. As a curious biohacker I was excited to see what Vitagene’s results would suggest. What would I discover about… Continue reading DIY – Genomic testing with Vitagene
What’s in store for autoimmunity? How close are we to bridging the autoimmune abyss? What happens now? Take a look at our New Year series recapping and moving forward in autoimmune disease on Tincture - Medium The State of Autoimmunity 2016 - A Progress Report The state of autoimmune disease research and care is very much like… Continue reading The Future of Autoimmunity
