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The importance of patients participating in clinical trials can not be underestimated. Just ask Alicia Staley, the Vice President of patient affairs at Science 37, who believes, “It is our obligation as patients, at the end of a treatment journey, to turn around and hold the hands of others.” At Your Autoimmunity Connection we have… Continue reading Science 37- Accelerating Biomedical Research by Putting Patients First
As a chronic disease patient, navigating the healthcare system can feel like fending for yourself in an unfamiliar big city - most other people seem to know their way around while you stand by, lost and confused. You are not alone. Some 117 million people, or about half of all US adults, are living with… Continue reading How to Achieve Your Optimal Wellbeing: A Patient Guide
Personal genomic testing may have the potential to help each of us maximize our wellbeing by finding the right foods and supplements, as well as helping us to find our optimal approach to alignment and exercise. As a curious biohacker I was excited to see what Vitagene’s results would suggest. What would I discover about… Continue reading DIY – Genomic testing with Vitagene
What’s in store for autoimmunity? How close are we to bridging the autoimmune abyss? What happens now? Take a look at our New Year series recapping and moving forward in autoimmune disease on Tincture - Medium The State of Autoimmunity 2016 - A Progress Report The state of autoimmune disease research and care is very much like… Continue reading The Future of Autoimmunity
By: Tiffany Simms, Bonnie Feldman, Ellen M. MartinDrBonnie360 returns to Stanford Medicine X a third time in a row, this time bringing the lonely voices of autoimmune disease to the main stage. After spotlighting autoimmune disease for two years, there is no better time to reverse the epidemic than today. A brighter, healthier future is… Continue reading Saving Our Children: Reversing the Autoimmune Epidemic
Turning Autoimmune Dreams into Reality Being a Big Vision entrepreneur is a ride on an emotional rollercoaster. My vision is of a connected world of personalized care for autoimmune patients that uses data and digital tools to reshape research, diagnosis and clinical practice for autoimmune disease. This, of course, is outside today’s mainstream thinking, which… Continue reading Ahead of My Time or Out of My Mind?
By: Tiffany Simms, Bonnie Feldman, Ellen M. Martin Autoimmunity is individually, statistically, institutionally invisible. Just reading the stats around autoimmune and chronic diseases could get you down in the dumps. Perhaps the worse part is that millions, probably billions, world-wide face this disease with a health care system that treats symptoms without looking at underlying… Continue reading Take Control of Your Own (Auto)Immune System
Why Should You Take Steps to be Healthy When you Already Feel Healthy? What is the Key to Healing? DrBonnie360, AutoimmuneMom, We Are Curious Inc., JIYO, and HopeLab come together to bring SXSW the secrets for your HacktoHeal [View the story “#HacktoHeal at #SXSW ” on Storify]
By Bonnie Feldman, Tiffany Simms and Ellen M Martin Through our surveys of autoimmune patients and our Stanford Medicine X workshop, we found many autoimmune patients feeling ill-used and underserved by conventional medical care. Many other blogs and web sites also spotlight these issues across the autoimmune community. Widespread are feelings that no one was… Continue reading Personalized Nutrition to Modify Autoimmune Symptoms
See the timeline on Storify: Hollywood Meets Digital Health through the Lens of a Cardiologist from DrBonnie360
