Having a chronic disease does not mean that we are powerless in achieving our best states of health. In fact, maximizing our personal well-being may be well within our control! More resources are becoming available to help patients overcome their chronic symptoms. One of these valuable resources is Vida’s personalized
By Bonnie Feldman, Ellen M Martin, and Tiffany Simms What Do We Mean by the Autoimmune Abyss? More than 50M patients in the US are living with 100+ different kinds of autoimmune diseases. In “The Lonely Voices of Autoimmune Disease” young adults talk about the challenges of living with chronic
As a teenager, I vividly remember my mother pacing the floors when she was unable to sleep. In fact, there she was, up and about, when I returned home late from a date. I never thought much about this at the time, until I reached the point in my own
Turning Autoimmune Dreams into Reality Being a Big Vision entrepreneur is a ride on an emotional rollercoaster. My vision is of a connected world of personalized care for autoimmune patients, using data and digital tools to reshape research, diagnosis, and clinical practice for autoimmune disease. This is outside today’s mainstream
By Bonnie Feldman and Ellen M Martin Digital health is filled with promise, but for autoimmune patients many gaps persist. With an eye to bridging those gaps, I recently attended two very different conferences: The Interdisciplinary Autoimmune Summit was a continuing education meeting to help practicing physicians better treat complex
Roni Zeiger MD is a physician who thinks that doctors have a lot to learn from their patients. As the former Chief Health Strategist at Google, Roni spent a great deal of time thinking about how people search for medical information online. He began to notice that “it’s easy to
The dimensions of Big Data can be summed up by The Four Vs: Volume, Variety, Velocity, and Veracity. But however large or diverse one’s data, it can often be hard to find exactly what one needs. As a researcher, I spend a lot of time on Google. I might
Have you ever noticed a problem and wondered why no one fixed it sooner? That is exactly what Howard Look, who has been the Vice President of Software and User Experience at TiVo, Pixar and Amazon, was thinking when his daughter got type 1 diabetes in 2011. Given his background
Each day there seems to be a new type of patient community popping up. A good place to start to learn about these new approaches is a “Report on the Use of Social Media to Prevent Behavioral Risk Factors Associated with Chronic Disease”, recently published by the eHealth Initiative. Additionally,