By Bonnie Feldman, Ellen M Martin, and Tiffany Simms What Do We Mean by the Autoimmune Abyss? More than 50M patients in the US are living with 100+ different kinds of autoimmune diseases. In “The Lonely Voices of Autoimmune Disease” young adults talk about the challenges of living with chronic
As a teenager, I vividly remember my mother pacing the floors when she was unable to sleep. In fact, there she was, up and about, when I returned home late from a date. I never thought much about this at the time, until I reached the point in my own
What’s in store for autoimmunity? How close are we to bridging the autoimmune abyss? What happens now? Take a look at our New Year series recapping and moving forward in autoimmune disease on Tincture – Medium The State of Autoimmunity 2016 – A Progress Report The state of autoimmune disease research and
Turning Autoimmune Dreams into Reality Being a Big Vision entrepreneur is a ride on an emotional rollercoaster. My vision is of a connected world of personalized care for autoimmune patients, using data and digital tools to reshape research, diagnosis, and clinical practice for autoimmune disease. This is outside today’s mainstream
By: Tiffany Simms, Bonnie Feldman, Ellen M. Martin Autoimmunity is individually, statistically, institutionally invisible. Just reading the stats around autoimmune and chronic diseases could get you down in the dumps. Perhaps the worse part is that millions, probably billions, world-wide face this disease with a health care system that treats
The dimensions of Big Data can be summed up by The Four Vs: Volume, Variety, Velocity, and Veracity. But however large or diverse one’s data, it can often be hard to find exactly what one needs. As a researcher, I spend a lot of time on Google. I might
Have you ever noticed a problem and wondered why no one fixed it sooner? That is exactly what Howard Look, who has been the Vice President of Software and User Experience at TiVo, Pixar and Amazon, was thinking when his daughter got type 1 diabetes in 2011. Given his background
Each day there seems to be a new type of patient community popping up. A good place to start to learn about these new approaches is a “Report on the Use of Social Media to Prevent Behavioral Risk Factors Associated with Chronic Disease”, recently published by the eHealth Initiative. Additionally,
How Big Data is Changing Current Research Methodology: Cancer Cancer is the second leading cause of death in the United States. Current treatments are ineffective with over 75% of patients not responding to treatments, despite the $50 billion pharmaceutical companies spend in research and development every year. In addition, patients
Do you ever wake up in the middle of the night with a flash of creativity (or good idea)? The idea for “Communities, Platforms and Data” came to me in the middle of the night as one of those flashes of creativity. While researching “Mobile Social Games for Health,” I